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I just wanna say -- the random comments thread

I'm so sorry @House Cat , that's horrible. When he gets a procedure done, are you given a copy of the results? Maybe you need to keep your own file from now on. This is just unbelievably careless of the doctor's office. Did it happen during a transfer of files, or what, if you know?
 
Hugs @Arcadian
Incompetence galore @House Cat ! SMH. Unprofessional professionals:angryfire:

I just noticed that I'm missing a piano pedal cover. My kitties find the oddest things intriguing.:eek-2::confused2:
 
Jeezus @House Cat this is just BS I am so sorry, I hate the 'new' way medicine is handled, one thing now you have to do, have a copy of his file in hardcopy in your hands.. sucks. Hugs to you and your son, my SIL has Crohns and it's painful.
 
I'm so sorry too HouseCat, and I'm hoping things work out for your son, hugs.
 
Housecat - Anyway you can get a new/different doctor? Really need someone who is sensitive to his situation. I feel for your son!
 
@House Cat , Oh my gosh. I would find a new specialist for my son. So sorry they are going to make your son have a colonoscopy.
 
Thanks everyone. I am a paper hoarder and there is a possibility I have the photos of his first colonoscopy when he was 8 years old that show signs of active disease. I am going through about ten boxes of paper this weekend. I guess it was time to go through that stuff.

Lesson learned. Always have your own medical records. Don’t count on any entity to keep them for you.
 
Hi,

The original records are kept by the hospital or facility that took the original tests. They are then forwarded to the Dr. Ask the original hospital for the records.

Annette
 
Right now, sitting on a flight to Atlanta. Love being able to use wifi here. Anyway coming back from KC. So, the update is my nephew is a match for my sister.

thats the great part. the bad part is now all the prep. Maybe I'm too impatient, angry, (both?) but that man of her's is a little worthless. He's not lifing a finger to do anything. If he does it, according to her, he holds it over her head. Thats some bullshit.

Ok fine. I'm paying to have the house deep cleaned. I'm paying to have the carpets cleaned, I'm paying for her to have a new bed of her own. I'm even paying to have the ductwork cleaned. They may have to give up the dogs because it will be too much to handle. That has to be their decision and not mine.

She will start treatment 1st week of July. My mother thought she was going to stay in the hospital for 3 months .... ok with what money? Federal worker insurance is good for just about anything BUT cancer.

So I had to talk my mother down off a ledge when she found out she will be at home and will be driven by friends to have the chemo done daily. I mean no, not ideal but its what has to be done.

Yes I hurt my mom's feelings. I know I did because I could hear it. a part of me didn't care because its not about her. A part of me felt like an ******* because its her child going through this and I'm merely a sibling.

Once I'm on the ground in ATL I will have to apologize for being so abrupt during this whole visit. It was a working visit which also put me on edge. I can't say I'm really much of a nice person IRL... But I also realized how unequipped my brother's are to handle this stuff. So I will direct the on how to help if they so choose to.

my cancer I handled alone. I had to because my folks were making me daft. My sister told me she was there when I wanted her to be and left me to my own devices (which I appreciated!) but she isn't me, she needs the support and asked me to help her so I am.

We talked about some hard stuff. like death type stuff. She's accepting of what can happen and preparing to do what is necessary. God, I'm not ready for this but I put on a brave face and let her drive however she wants. but like I said that man of hers.... Imma leave that alone.
 
@Arcadian, You are a wonderful sister. I repeat, you are a wonderful sister. Everyone’s emotions are at an all time high. You mom is probably not able to process this. She is scared and trust me if she is known to do or say some flacky things in the past, expect them now. If you feel you weren’t as kind as you should have been to your mom, just apologize and move on. Sometimes it’s hard to have an abundance of patience when your hurting this bad and know you are the one carrying most of the weight. It sounds like you are taking care of getting your sister what she needs. It would be wonderful if everyone stepped up equally but often it doesn’t work that way.

Don’t let your sisters man get to you. You need your energy for the people you love, your sister and the rest of your family. If he drives you crazy, walk out of the room. Come here to vent.

You are a great comfort and support for your sister. Take solace in knowing how much you are helping her. Very few things in life compare to what you are going thru. Be kind to yourself. And you are wrong, you are a nice person.

I’m so sorry you are having to deal with all the pain of having your sister being so sick. It really sucks and is overwhelming. Hugs, Callie
 
@Arcadian, you are such a wonderful sister! I'm glad that your sister was lucky enough to be born as your sibling, and I mean that in all sincerity. She is blessed. I'm sorry for all you've gone through, and this tough road ahead. I hope it all works out. Take care.
 
Thinking of you @Arcadian and of your sister and wishing her a complete recovery. She is lucky you are there for her. Quite often I see that when one support system of someone's life is lacking there are others who will and do take that place for that person. That person is you and your sister is so fortunate you are there for her and on her side always.
 
House Cat said:
Thanks everyone. I am a paper hoarder and there is a possibility I have the photos of his first colonoscopy when he was 8 years old that show signs of active disease. I am going through about ten boxes of paper this weekend. I guess it was time to go through that stuff.

Lesson learned. Always have your own medical records. Don’t count on any entity to keep them for you.
Click to expand...

Thinking of you @House Cat and keeping your son in my thoughts. Hoping all goes well and he is doing much better very soon.
 
Thank you guys for allowing me to just vent and get this crap off my chest. I'm trying to be a good sister (as good as one could be anyway?) but I really can't deny my own nature sometimes. I've been the one people go to to get things done. even in my own family. That also means I'm not the nice one.

My sister slipped and called me "the favorite one" I started laughing and said no, not at all. When I needed help from mom and dad, I was told to "figure it out". Its not because they didn't love me, its because they had to help the oldest (my sister, my oldest brother) through life. They didn't treat me like dirt by any means, but the oldest 3 kept them busy.

She saw things differently at that time, and what she thought was "freedom", wasn't. I figured I would be open with her (no reason not to as she asked). She didn't realize I had that much responsibility on my shoulders.


@House Cat you and your son are in my thoughts. Indeed, its a MUST to have copies of especially the really important diagnostic records if you can. I have so much spread to the 4 winds that if I had not kept copies (especially back in the day) and kept them in a safe, it would be a bit of a nightmare to get them now. And colonoscopies suck, even more so for someone so young. I don't care what they say, that so called pineapple prep drink ain't pineapple...lol
 
You're a good sister Arcadian. Its like my DH used to say about taking care of his parents. They made it difficult to be a good son. He tried to get things
done but they always set up road blocks...couldnt do things themselves but wanted things done their way even if caused DH extra work/patience.

I'm impressed by people who can take the lead and get $hit done. Sounds like you're doing a great job Arcadian...if anyone gets in your way or criticizes
you ask them if they'd like to take over the job. That should shut them up.
 
Thank you everyone..
@Arcadian , you and your family are on my mind as well. I can’t imagine what you must be feeling. If it were me, all of that feeling would be a hard rock in my chest. I am sending you hugs. Your whole family is so lucky to have you. I am also amazed at your ability to get everything done.

Also, I am sorry you endured your cancer alone. This leaves me speechless. Another hug.

~~~

My son has his colonoscopy today. We are old hands at this as we’ve both been through this more times than I know. He, of course, will go through the hard part. He says the prep is worse than the procedure. I will assume my position as supportive mother and then nervous mother while he is out. They always put him completely under because when he was eight, he screamed through the entire procedure...twilight sleep doesn’t work for him.

I really hope we hear the doctor’s findings today,

Next week I go to Kaiser and demand that they search for his paper file.
 
House Cat, Sending buckets of dust for you and your son today. Is your husband with at the hospital today? Please know we are here for you.
 
HI:

Healing vibes your way House Cat. Your sons records may be in cold storage. Success to you.

cheers--Sharon
 
Thanks for your support everyone. It means a lot.

His colonoscopy went well. He was blown away by the medication they gave him this time for the prep. It was called SUPREP. You drink one cup of the stuff at 5:00pm and then another cup in the morning. That’s it. And it lets you sleep at night. No gallon of nightmarish prep that you have to drink every hour that makes you sick...

He has been rediagnosed. His disease was active, which was a big deal because it is rare that the docs ever see it by the time they give him a scope. The doc says he doesn’t have Crohn’s but he does have a mild case of ulcerative colitis that is localized and can be managed with much less toxic meds than what my son is currently taking!!!

We went from thinking he was going to have to make some very difficult medication choices that could include the risk of death to him being misdiagnosed and taking meds that will be related to aspirin!

I’m feeling so grateful today.

The subject of his missing file came up and the doc said that even the second pediatric GI specialist who also worked for Kaiser couldn’t get ahold of that file. I feel our chances are slim with getting this information.
 
House Cat said:
He has been rediagnosed. His disease was active, which was a big deal because it is rare that the docs ever see it by the time they give him a scope. The doc says he doesn’t have Crohn’s but he does have a mild case of ulcerative colitis that is localized and can be managed with much less toxic meds than what my son is currently taking!!!

We went from thinking he was going to have to make some very difficult medication choices that could include the risk of death to him being misdiagnosed and taking meds that will be related to aspirin!
Click to expand...
Wonderful news HC. Sending buckets of PS dust that the new meds get him feeling fit as a fiddle soon.
 
Oh House Cat, I am so happy for you and your son! So glad they saw it and it was something they can handle with less toxic meds. All and all sounds
like you and your son had a really good day!
 
House Cat, that is great news! I'm sorry they lost the records but the prep sounds far more tolerable and finding that less toxic medicine can be used is just beyond wonderful.
 
@House Cat that is wonderful news!!! So happy for you and your son!!! :appl:
 
I'm so glad his prep was much easier this time! How old is he?
 
Great news House Cat!
 
I am so sad and frustrated. I know here is the only place I can vent because you all will understand. Waaaaay back in February hubby surprised me with a Louis Vuitton bracelet. It was to be my Valentine's Day and 40th Birthday present. It was really pretty, but so dainty, and it didn't fit. I was so upset, felt guilty/ungrateful/selfish. After many tears and much apprehension, I told him how I felt. In the end the bracelet was returned for a full refund with the understanding that a majority of the funds would be set aside for a "sparklie fund." This was my understanding.

Fast forward to today: Hubs gets a box. Inside this box is his Father's & Birthday Present "from the kids" OH I AM SO SAD! :(sad:cry2: I know you all will understand, I was really hoping that just maybe the funds would be actually set aside and that I'd actually get the Love that I've wanted for a long while. Well...maybe, just maybe he'll surprise me later with it....:(
 
I just heard that consumption of popcorn increased exponentially within the past 24 hours due to Pricescope. :lol-2:
 
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