- Joined
- Jun 8, 2008
- Messages
- 54,813
Zlata, thanks for the additional info. And wow, I never met anyone else with DU. Weird how our bodies react to things. I'm just like you in that even the most sensitive of lotions cause a reaction. It can be very frustrating finding what works or at least what won't make things worse. Thanks so much for sharing what works for you!
NYC is lovely this time of year. The only problem are the crowds and crowds. It's hard to even see the Rockefeller tree and the dept store windows but you can bet we are going to be doing our Christmas tradition of doing all of this despite the crowds.
Happy holidays!
Kristie , you are a dear so feel free to multiple post to me anytime lol. I just thought you were feeling very emphatic about what you were posting haha.
I am so glad Finn is doing well! I know that is your best holiday gift of all.
This has been my Annus Horibilus and I hope 2015 will bring health and happiness to us all. I know I don't have the monopoly on bad things happening and in the grand scheme of things I am lucky I know. It's just been challenging health wise for me and continues to be.
I went to PT this morning because I realized Victor is away after this week till Jan 5th so I decided to have my last PT session of 2014. And he admitted today that he thought my toe tendonitis would be better by now and because it is not I am behind where he thinks I should be. Mind you I forced it out of him by asking point blank am I behind progress wise. Because it hurts to bend my toe and because my toe has limited motion I cannot move my ankle as much when walking or doing other activities so there you have it. A vicious cycle. He advised me to do even more toe/tendon stretching multiple times a day. I am not letting it get me down because I am doing all I can do and am determined to get better. The face issue is actually causing me more discomfort right now. It's getting raw again and I just don't know what to do. Doing nothing was what caused the biggest irritation of all a few weeks ago so for now I am applying tiny amounts of topical meds as prescribed and waiting for the Oracea to kick in.
Again, I am trying to keep it all in perspective and I am incredibly fortunate my dh is so understanding and supportive. The work issue is not something I have to be concerned with right now (though I am getting some pressure about returning from the people at work) because Greg is so supportive. I do want to return but I need to feel stronger and better before I do so I am not letting anyone pressure me and that really goes a long way re my mental status. Speaking of which brings me to your other recommendation.
You are right in that I am being resistant to taking Atarax though don't get me wrong. I don't think there is anything wrong with taking anti anxiety meds and I am keeping that option in my back pocket so to speak if I really feel it necessary. My concern right now is twofold. One I react strangely to many meds and as you correctly pointed out I am on a lot of meds. I would rather not add any more to the mix unless I had to. And two, I don't feel I am at the point I need a med to relax me ( though I am naturally type A and this year did nothing to help that haha) but your point is well taken and very much appreciated Kristie. Know that.
I also want you to know that last month I asked my derm about Atarax and he just said not necessary. LOL. I have to laugh because he didn't even discuss it with me but truthfully I didn't feel like pursuing it at the time. However at my next derm appointment I will ask him about it in more detail. David is cool and I think if I really push the issue he would write an Rx for it. I cannot be sure of that but that is my feeling anyway. So I have an appointment with him in mid January and I am going to bring the Atarax question up again.
As for the other meds (Rifaximin etc) my derm and I discussed them at length in the past. I will bring it up again when I see him however as that was a long time ago. Thanks for thinking of meds that you feel might help. I appreciate that!
David Cohen (my derm) is very well respected in the field and considered a rosacea expert in the medical community and I myself am very knowledgeable about rosacea out of necessity. It took a few years but I got it under control with David's help and my tenacity. Unfortunately for whatever reason it came back in October with company (perioral dermatitis and seb derm). Could be that when I stopped the Oracea in Feb/March of this year it took all that time for me to rebound I don't know. I thought I was in the clear at this point. I was so apprehensive when I had to go off Oracea this past Feb/March that I was practically begging David not to make me go off it (I had no choice as that was when I developed the severe esophagitis). Then months and months passed and my skin was clear and I was so relieved. I really thought whew I dodged that bullet. Little did I know it was all just lurking ready to attack all these months later. Oh well. I just hope the Oracea kicks in soon and helps relieve my major symptoms.
How are you doing with your rosacea symptoms? I am sorry you are dealing with restless leg syndrome in addition to rosacea. I had no clue it was part of the rosacea constellation. I hope the Rifaximin works well for you and I hope your rosacea is mild and never bothers you in the least. Keep me posted about how the med works for you. Do you have face flushing/burning and/or paps? It can be such a pain. I remember when I was first diagnosed (2006) my face started flushing and burning out of nowhere and it was a difficult adjustment. That's the year I went from perfect skin to very imperfect skin.
Kristie, thank you again for continuing to be here for me with your wide array of helpful info and good suggestions and good wishes. I know you know I appreciate it but it doesn't hurt for me to say it again. Thank you and I hope you start feeling 100% very soon.
OK enough gloomy medical chit chat. LOL I know I'm getting old when my favorite topic of conversation is health. OMG I have 56 plus pages devoted to it here. My apologies to all! May 2015 bring nothing but happy talk of bling and more bling!
NYC is lovely this time of year. The only problem are the crowds and crowds. It's hard to even see the Rockefeller tree and the dept store windows but you can bet we are going to be doing our Christmas tradition of doing all of this despite the crowds.
Happy holidays!
Kristie , you are a dear so feel free to multiple post to me anytime lol. I just thought you were feeling very emphatic about what you were posting haha.
I am so glad Finn is doing well! I know that is your best holiday gift of all.
This has been my Annus Horibilus and I hope 2015 will bring health and happiness to us all. I know I don't have the monopoly on bad things happening and in the grand scheme of things I am lucky I know. It's just been challenging health wise for me and continues to be.
I went to PT this morning because I realized Victor is away after this week till Jan 5th so I decided to have my last PT session of 2014. And he admitted today that he thought my toe tendonitis would be better by now and because it is not I am behind where he thinks I should be. Mind you I forced it out of him by asking point blank am I behind progress wise. Because it hurts to bend my toe and because my toe has limited motion I cannot move my ankle as much when walking or doing other activities so there you have it. A vicious cycle. He advised me to do even more toe/tendon stretching multiple times a day. I am not letting it get me down because I am doing all I can do and am determined to get better. The face issue is actually causing me more discomfort right now. It's getting raw again and I just don't know what to do. Doing nothing was what caused the biggest irritation of all a few weeks ago so for now I am applying tiny amounts of topical meds as prescribed and waiting for the Oracea to kick in.
Again, I am trying to keep it all in perspective and I am incredibly fortunate my dh is so understanding and supportive. The work issue is not something I have to be concerned with right now (though I am getting some pressure about returning from the people at work) because Greg is so supportive. I do want to return but I need to feel stronger and better before I do so I am not letting anyone pressure me and that really goes a long way re my mental status. Speaking of which brings me to your other recommendation.
You are right in that I am being resistant to taking Atarax though don't get me wrong. I don't think there is anything wrong with taking anti anxiety meds and I am keeping that option in my back pocket so to speak if I really feel it necessary. My concern right now is twofold. One I react strangely to many meds and as you correctly pointed out I am on a lot of meds. I would rather not add any more to the mix unless I had to. And two, I don't feel I am at the point I need a med to relax me ( though I am naturally type A and this year did nothing to help that haha) but your point is well taken and very much appreciated Kristie. Know that.
I also want you to know that last month I asked my derm about Atarax and he just said not necessary. LOL. I have to laugh because he didn't even discuss it with me but truthfully I didn't feel like pursuing it at the time. However at my next derm appointment I will ask him about it in more detail. David is cool and I think if I really push the issue he would write an Rx for it. I cannot be sure of that but that is my feeling anyway. So I have an appointment with him in mid January and I am going to bring the Atarax question up again.
As for the other meds (Rifaximin etc) my derm and I discussed them at length in the past. I will bring it up again when I see him however as that was a long time ago. Thanks for thinking of meds that you feel might help. I appreciate that!
David Cohen (my derm) is very well respected in the field and considered a rosacea expert in the medical community and I myself am very knowledgeable about rosacea out of necessity. It took a few years but I got it under control with David's help and my tenacity. Unfortunately for whatever reason it came back in October with company (perioral dermatitis and seb derm). Could be that when I stopped the Oracea in Feb/March of this year it took all that time for me to rebound I don't know. I thought I was in the clear at this point. I was so apprehensive when I had to go off Oracea this past Feb/March that I was practically begging David not to make me go off it (I had no choice as that was when I developed the severe esophagitis). Then months and months passed and my skin was clear and I was so relieved. I really thought whew I dodged that bullet. Little did I know it was all just lurking ready to attack all these months later. Oh well. I just hope the Oracea kicks in soon and helps relieve my major symptoms.
How are you doing with your rosacea symptoms? I am sorry you are dealing with restless leg syndrome in addition to rosacea. I had no clue it was part of the rosacea constellation. I hope the Rifaximin works well for you and I hope your rosacea is mild and never bothers you in the least. Keep me posted about how the med works for you. Do you have face flushing/burning and/or paps? It can be such a pain. I remember when I was first diagnosed (2006) my face started flushing and burning out of nowhere and it was a difficult adjustment. That's the year I went from perfect skin to very imperfect skin.
Kristie, thank you again for continuing to be here for me with your wide array of helpful info and good suggestions and good wishes. I know you know I appreciate it but it doesn't hurt for me to say it again. Thank you and I hope you start feeling 100% very soon.
OK enough gloomy medical chit chat. LOL I know I'm getting old when my favorite topic of conversation is health. OMG I have 56 plus pages devoted to it here. My apologies to all! May 2015 bring nothing but happy talk of bling and more bling!