Which mattress is least toxic?

[Phoenix]

If this guy is not a good fit, you have to get someone that is. A good endocrinologist is essential, especially for all that you've got going on! In the meantime, I wonder if your PCP is an MD or a DO? Seeing a DO may be more beneficial in your case, and they may know of a good endocrinologist.

At the time of my severe inflammation, I had shakes and tingling and involuntary twitching. Yes, a sublingual dose of B12 would alleviate the symptoms temporarily. But doing all the detoxifying is what really did it. You have support from your PS friends....You can do this!!!

You are soooo welcome! I am also very glad to see others piping in to support you! I love seeing the great ideas and thoughts here!

@luvmysparklies ,

I have to see if I can take this NDT. This is what I take. I am super reluctant to start on it, as I always seem to react to supplements and meds. I am seeing another endo next month, based on the recommendation of my GP/PCP. She's supposed to be very good. We shall see...





The reason I landed in the hospital last week was because my BP spiked to 168/104. HR was 100. It calmed down for 3 days and went back up to similar levels. Drs didn't seem too concerned and refused to put me on BP meds, lol. I think the spikes were to do with Pfizer. I've read many cases of people having had spikes in both BP and HR. I hope mine calms down eventually. Been monitoring since I came home but am trying not to be too obsessed with the numbers. DNRS and 4-7-8 breathing technique seem to be helping. BP and HR readings seem to have come down to near-normal levels (normal being 120-130 over 80-90).

I am also wondering if the B2 and B6 that my naturopath has recently asked me to take (though I take like 1/3rd and then 1/2 the recommended dosage), might have had something to do with the raised BP. Maybe even the magnesium (I started using the topical oil, just a tiny amount). I really dunno.

My GP/PCP is an MD. I do have the naturopath. But neither (along with a bunch of other specialists) know what to do with me. The people at the hospital INSISTED that I take an MRI brain scan (2nd or 3rd time people have asked me in as many months), to figure out of something was wrong with my brain/ was I about to have a stroke/ what's the cause for my vertigo and dizziness). Of course they couldn't find anything wrong with my brain, other than the frontal lobes have shrunk a little which is to be expected given my age!! {insert crying face here, lol}. There are some minor issues with the nerves around my C5/C6. At least I think that's what they said. I tried to read the notes that came with the MRI scan but couldn't really understand this. I think it's got something to do with my neck and shoulder pain. Shall have to consult a neurologist about this. Saw one just a few of years ago, he couldn't find anything.

Ah well, back to being a long hauler along with many others with so clear resolution(s).

Thanks so much for your post. I can feel the love coming from it. xoxo

 

[mellowyellowgirl]

Sorry to blow in like this!

But your comments re aged beef and histamines just cleared up a life long mystery for me!

I'm Asian and have been told all my life by other Asians never to eat beef if I'm trying to heal from a wound/cut/skin condition. They never explained why!!! The histamines thing makes sense now!!! That must be why they think beef is bad for healing!!!

 

[Phoenix]

Sorry to blow in like this!

But your comments re aged beef and histamines just cleared up a life long mystery for me!

I'm Asian and have been told all my life by other Asians never to eat beef if I'm trying to heal from a wound/cut/skin condition. They never explained why!!! The histamines thing makes sense now!!! That must be why they think beef is bad for healing!!!

Lol. I have no idea what histamines have to do with wound healing. But sorry to hear you're dealing with it. Hope it heals soon. Sending you healing vibes!

ETA: Oh yes, histamines cause vasodilatation.

 

[mellowyellowgirl]

Lol. I have no idea what histamines have to do with wound healing. But sorry to hear you're dealing with it. Hope it heals soon. Sending you healing vibes!

ETA: Oh yes, histamines cause vasodilatation.

Aww thanks Phoenix but don't worry I'm absolutely fine!!! This was from my childhood where I'd graze a knee and then get banned from beef for a few weeks!

Sending you lots of brimming healthy vibes!!!!

So interesting to finally understand why! I don't even think my elders understood why! No one could explain it ever! Just told us: Don't eat beef!

 

[Phoenix]

Aww thanks Phoenix but don't worry I'm absolutely fine!!! This was from my childhood where I'd graze a knee and then get banned from beef for a few weeks!

Sending you lots of brimming healthy vibes!!!!

So interesting to finally understand why! I don't even think my elders understood why! No one could explain it ever! Just told us: Don't eat beef!

Glad to hear.

And thank you.

 

[luvmysparklies]

@luvmysparklies ,

I have to see if I can take this NDT. This is what I take. I am super reluctant to start on it, as I always seem to react to supplements and meds. I am seeing another endo next month, based on the recommendation of my GP/PCP. She's supposed to be very good. We shall see...

This is great news! Question about the pictured meds. I see on the label, "Hypothyroid treatment." So you have definitely been diagnosed with hypo, not hyper thyroidism?

The reason I landed in the hospital last week was because my BP spiked to 168/104. HR was 100. It calmed down for 3 days and went back up to similar levels. Drs didn't seem too concerned and refused to put me on BP meds, lol. I think the spikes were to do with Pfizer. I've read many cases of people having had spikes in both BP and HR. I hope mine calms down eventually. Been monitoring since I came home but am trying not to be too obsessed with the numbers. DNRS and 4-7-8 breathing technique seem to be helping. BP and HR readings seem to have come down to near-normal levels (normal being 120-130 over 80-90).

It is a good idea NOT to obsess about the numbers because the worrying will cause spiking as well. If monitoring your blood pressure, just take it first thing in the morning when you wake up. That is the best time to get an accurate reading. You can then look at where you are over the course of the week. These numbers will be helpful to your doc.

I am also wondering if the B2 and B6 that my naturopath has recently asked me to take (though I take like 1/3rd and then 1/2 the recommended dosage), might have had something to do with the raised BP. Maybe even the magnesium (I started using the topical oil, just a tiny amount). I really dunno.

I appreciate the whole body health that a naturopath operates from. However, it really is essential to make sure through blood/lab work that you actually need these supplements. That you are actually deficient. This is (partly) why doctors (MD) generally either don't recommend these kinds of supplements or they insist on you telling them everything that you are taking in the event of contraindications. What or who is causing you to take the magnesium? Supplements can be really helpful, but you need to have some proof that you are actually deficient in what ever the supplementation is because you can potentially cause your body's natural internal balance to be thrown off.

My GP/PCP is an MD. I do have the naturopath. But neither (along with a bunch of other specialists) know what to do with me. The people at the hospital INSISTED that I take an MRI brain scan (2nd or 3rd time people have asked me in as many months), to figure out of something was wrong with my brain/ was I about to have a stroke/ what's the cause for my vertigo and dizziness). Of course they couldn't find anything wrong with my brain, other than the frontal lobes have shrunk a little which is to be expected given my age!! {insert crying face here, lol}. There are some minor issues with the nerves around my C5/C6. At least I think that's what they said. I tried to read the notes that came with the MRI scan but couldn't really understand this. I think it's got something to do with my neck and shoulder pain. Shall have to consult a neurologist about this. Saw one just a few of years ago, he couldn't find anything.

Vertigo/dizziness: Have you been seen by an ENT to rule out a vestibular issue? If you have an inner ear issue, it can cause what is called peripheral vertigo. It is excellent news that there is nothing wrong with your brain! Hey, we gotta take the wins! The C5 and 6 issues come with aging. If the MRI did not show major nerve pinching (called impingement) then that is a good thing and then your shoulder/neck pain can be attributed to natural arthritic changes. A neurologist can help determine why you are dizzy and the extent to which you have any nerve damage. The only other thing I would suggest is that your neurologist also send you for an MRA. This is going to be similar to an MRI except an MRA of the brain will focus on the actual nerves, not just the structure like the MRI does. If you do have an untreated/undiagnosed vestibular issue, there is a part of your brain that will try and compensate. The body has all kinds of fail safes to deploy if one thing is off or non functioning. Your brain needs a very particular/specific homeostasis to be in place in order to fully do everything it is responsible for. So, echoing back to supplementation if you don't need it, the homeostasis within the brain can be affected (as well as the homeostasis in the body). Also, related to dizziness, If there is something off with your pituitary gland you can experience dizziness. These are merely suggestions/clues (not diagnoses!) for you to explore with your team of docs who should not be operating in silos, but should be coordinating with one another for your care and I would definitely encourage you to consult with a neurologist about these tests.

Ah well, back to being a long hauler along with many others with so clear resolution(s).

Thanks so much for your post. I can feel the love coming from it. xoxo

You are welcome and supported!!!

 

[Phoenix]

This is great news! Question about the pictured meds. I see on the label, "Hypothyroid treatment." So you have definitely been diagnosed with hypo, not hyper thyroidism?

It is a good idea NOT to obsess about the numbers because the worrying will cause spiking as well. If monitoring your blood pressure, just take it first thing in the morning when you wake up. That is the best time to get an accurate reading. You can then look at where you are over the course of the week. These numbers will be helpful to your doc.

I appreciate the whole body health that a naturopath operates from. However, it really is essential to make sure through blood/lab work that you actually need these supplements. That you are actually deficient. This is (partly) why doctors (MD) generally either don't recommend these kinds of supplements or they insist on you telling them everything that you are taking in the event of contraindications. What or who is causing you to take the magnesium? Supplements can be really helpful, but you need to have some proof that you are actually deficient in what ever the supplementation is because you can potentially cause your body's natural internal balance to be thrown off.

Vertigo/dizziness: Have you been seen by an ENT to rule out a vestibular issue? If you have an inner ear issue, it can cause what is called peripheral vertigo. It is excellent news that there is nothing wrong with your brain! Hey, we gotta take the wins! The C5 and 6 issues come with aging. If the MRI did not show major nerve pinching (called impingement) then that is a good thing and then your shoulder/neck pain can be attributed to natural arthritic changes. A neurologist can help determine why you are dizzy and the extent to which you have any nerve damage. The only other thing I would suggest is that your neurologist also send you for an MRA. This is going to be similar to an MRI except an MRA of the brain will focus on the actual nerves, not just the structure like the MRI does. If you do have an untreated/undiagnosed vestibular issue, there is a part of your brain that will try and compensate. The body has all kinds of fail safes to deploy if one thing is off or non functioning. Your brain needs a very particular/specific homeostasis to be in place in order to fully do everything it is responsible for. So, echoing back to supplementation if you don't need it, the homeostasis within the brain can be affected (as well as the homeostasis in the body). Also, related to dizziness, If there is something off with your pituitary gland you can experience dizziness. These are merely suggestions/clues (not diagnoses!) for you to explore with your team of docs who should not be operating in silos, but should be coordinating with one another for your care and I would definitely encourage you to consult with a neurologist about these tests.

You are welcome and supported!!!

Thank you so much once again for your help. It's making me think (doesn't happen very often, lol). I shall respond in detail tomorrow. It's late here and am really dizzy. Just a quick Q please? How do I know/ how can one test, if there's something wrong with my pituitary gland?

The endo didn't diagnose me with hypo. I have Hashimoto's (elevated Tg and TPO antibodies) and my thyroid panel results do not seem to indicate that I've gone hypo. My TSH was around 0.55 as of last week. Hmm...gonna have to think seriously about starting that NDT med.

 

[Gloria27]

Sorry to blow in like this!

But your comments re aged beef and histamines just cleared up a life long mystery for me!

I'm Asian and have been told all my life by other Asians never to eat beef if I'm trying to heal from a wound/cut/skin condition. They never explained why!!! The histamines thing makes sense now!!! That must be why they think beef is bad for healing!!!

Could it be because beef is harder to digest and takes more energy? Or plain superstition?
Animals don't eat when they are sick so they can heal faster, this is fact and it makes sense. So maybe it makes sense that eating something hard to digerst would slow down recovery?

I never felt ill after beef despite the histamines, but orange juice (bottled) was bad when I was at my worst. Normally I eat oranges from time to time with no issues.

 

[luvmysparklies]

Thank you so much once again for your help. It's making me think (doesn't happen very often, lol). I shall respond in detail tomorrow. It's late here and am really dizzy. Just a quick Q please? How do I know/ how can one test, if there's something wrong with my pituitary gland?

The endo didn't diagnose me with hypo. I have Hashimoto's (elevated Tg and TPO antibodies) and my thyroid panel results do not seem to indicate that I've gone hypo. My TSH was around 0.55 as of last week. Hmm...gonna have to think seriously about starting that NDT med.

This can be done with a blood test ordered by your PCP. They know to mark the ACTH on the form if testing for your pituitary gland hormone. These cortisol tests are best done in the morning, just so you know. Also, I asked if you were hypo or hyper thyroid because the label on the meds was for treating hypo thyroidism. I want to be careful here and not go too far regarding what should be medical advice. But, my opinion which is NOT a medical opinion is this: What you have pictured above are supplements which (because they are supplements) they have not been prescribed specifically by an endocrinologist. As you mentioned above, if the endo did NOT diagnose you with hypothyroidism, please re-examine why you would consider taking anything for that condition. I would agree that with a TSH of 0.55, it would seem that you are not hypo.

What I have been trying to convey is that, while a naturopath can have a role in your health care, in your extreme situation, I don't know that they should play more of a role than a physician whose subspecialty matches your condition(s). MDs are all basically PCPs as a matter of the foundational training. However, the ones that further their medical education to pursue being an endocrinologist, orthpedic, gastrointerologist, cardiologist, etc. possess the advanced level training required for specific issues. You have special (specific) medical needs right now that require physician (MD) treatment/care/intervention. Please take this in the spirit in which I gently mean, but supplements can really EFF you up if you are taking them to address something that is not lacking- and especially if you have a condition that requires an advanced level of medical training to balance (again homeostasis). You having all of this inflammation, numbers gone berserk could also mean that the naturopath is put on a hold until your TEAM of conventional MDs can coordinate your care. I know you just want to feel better. But, since thyroids require such a delicate balance and play such a crucial role in our health, it may be best to think about supplements the way that you consider beef, histamines, and re-evaluate if "supplements" are the best way back to normal in this serious situation. Like, why are you back on magnesium if you don't have bloodwork validating that you need it? Who is telling you to take this?

This is NOT you, but there have been people (regular and famous) that were given a serious diagnosis and opted solely for natural remedies and it did not work out too well for them. With you feeling horrible enough that you had a hospital stay due to blood pressure spikes, then along with unintentional weight loss, thyroid panel way off, inflammation and all the other things that are making you feel unwell, please, please see medical doctor(s) (specialists) who will get the bottom of what is going on with you and provide targeted treatment so that you can heal. It is frustrating because it seems right now that no one is giving you definitive answers and you are suffering. You might hear something to the effect of, "your symptoms are non-specific." Why? Because dizziness, raised blood pressure, tingling, etc. can be caused by a number of reasons. But, you have to be your own advocate and continue to pursue, because the practice of medicine can often times be a process of ruling out before the absolute diagnosis or diagnoses can materialize.

 

[Phoenix]

This can be done with a blood test ordered by your PCP. They know to mark the ACTH on the form if testing for your pituitary gland hormone. These cortisol tests are best done in the morning, just so you know. Also, I asked if you were hypo or hyper thyroid because the label on the meds was for treating hypo thyroidism. I want to be careful here and not go too far regarding what should be medical advice. But, my opinion which is NOT a medical opinion is this: What you have pictured above are supplements which (because they are supplements) they have not been prescribed specifically by an endocrinologist. As you mentioned above, if the endo did NOT diagnose you with hypothyroidism, please re-examine why you would consider taking anything for that condition. I would agree that with a TSH of 0.55, it would seem that you are not hypo.

What I have been trying to convey is that, while a naturopath can have a role in your health care, in your extreme situation, I don't know that they should play more of a role than a physician whose subspecialty matches your condition(s). MDs are all basically PCPs as a matter of the foundational training. However, the ones that further their medical education to pursue being an endocrinologist, orthpedic, gastrointerologist, cardiologist, etc. possess the advanced level training required for specific issues. You have special (specific) medical needs right now that require physician (MD) treatment/care/intervention. Please take this in the spirit in which I gently mean, but supplements can really EFF you up if you are taking them to address something that is not lacking- and especially if you have a condition that requires an advanced level of medical training to balance (again homeostasis). You having all of this inflammation, numbers gone berserk could also mean that the naturopath is put on a hold until your TEAM of conventional MDs can coordinate your care. I know you just want to feel better. But, since thyroids require such a delicate balance and play such a crucial role in our health, it may be best to think about supplements the way that you consider beef, histamines, and re-evaluate if "supplements" are the best way back to normal in this serious situation. Like, why are you back on magnesium if you don't have bloodwork validating that you need it? Who is telling you to take this?

This is NOT you, but there have been people (regular and famous) that were given a serious diagnosis and opted solely for natural remedies and it did not work out too well for them. With you feeling horrible enough that you had a hospital stay due to blood pressure spikes, then along with unintentional weight loss, thyroid panel way off, inflammation and all the other things that are making you feel unwell, please, please see medical doctor(s) (specialists) who will get the bottom of what is going on with you and provide targeted treatment so that you can heal. It is frustrating because it seems right now that no one is giving you definitive answers and you are suffering. You might hear something to the effect of, "your symptoms are non-specific." Why? Because dizziness, raised blood pressure, tingling, etc. can be caused by a number of reasons. But, you have to be your own advocate and continue to pursue, because the practice of medicine can often times be a process of ruling out before the absolute diagnosis or diagnoses can materialize.

@luvmysparklies ,

I wish PS had a PM function so I don't discuss my issues here on a public forum.

I've had dizziness (off balance, feeling like I am going to fall, feeling like I am on a boat) and vertigo attacks (room or objects around me spinning) for almost 5 years now. My first and 2nd vertigo attacks were in Oct 2017 and Oct 2018 respectively. First one followed a viral infection (I still don't know what it was). I didn't have any vertigo attack - at all - for 3 years from Oct 2018 til Dec 2021. My daily dizziness from 2017 to Dec 2021 improved progressively until I was able to lift weights and/ or do aerobics exercise in those 3 years, like I was having my normal life back again, with a teeny tiny bit of dizziness. I was able to go out socialise, meet with friends, go through a house sale, hose move, renovation, moving, more renovation it etc etc. Also even at my worst in end 2017 and beginning 2018, I was never this bad, I was back to lifting weights in Dec 2017 after having been sick for 2 months. My tinnitus along with ultra-sensitivity to light, sounds and smells have shot through the roof, along with my thyroid antibodies.

It was only since my Pfizer jabs in Oct & Nov 2021, that I began to deteriorate very rapidly. I was able to host Christmas dinner in 2021 and hosted another dinner and another lunch in Jan and Feb this year. Then from around April til now, I am super super dizzy and have been having additional symptoms like tremors (both external and internal), spikes in BP and HR, started developing histamine reactions to foods I'd eaten my entire life (ie. shellfish, certain vegetables, certain fruits) as well as oxalates and salicylate issues. My test results from Great Plain Labs indicated I have this HI, ox and sal issues, after I'd already developed symptoms.

I am going to post this right now as I don't want to lose it and having to re-type again.

 

[Phoenix]

This can be done with a blood test ordered by your PCP. They know to mark the ACTH on the form if testing for your pituitary gland hormone. These cortisol tests are best done in the morning, just so you know. Also, I asked if you were hypo or hyper thyroid because the label on the meds was for treating hypo thyroidism. I want to be careful here and not go too far regarding what should be medical advice. But, my opinion which is NOT a medical opinion is this: What you have pictured above are supplements which (because they are supplements) they have not been prescribed specifically by an endocrinologist. As you mentioned above, if the endo did NOT diagnose you with hypothyroidism, please re-examine why you would consider taking anything for that condition. I would agree that with a TSH of 0.55, it would seem that you are not hypo.

I shall ask my MD to run this. Surprising no one has told me about this, at all! Noted that it's done in the morning. This is by serum/blood drawn? I know there's some test for cortisol/ the adrenals that is done by saliva, at regular internals within a 24 hour timeframe.

When I was tested for thyroid some 12 years ago, my then endo wouldn't give me any med as my TSH, T3 and T4 were within normal range (and they still are), even though I was having symptoms (weight gain that wouldn't shift), MASSIVE amounts of hair loss on a daily basis, insomnia, BM issues etc. And my antibodies were slightly elevated, at 200-400 Tg (I think) and just around 50-60 TPO. I begged and she finally relented and prescribed Euthyrox 12.5mcg (half of a 25mcg tablet). My antibodies numbers went up in the following years, gradually but surely. But my symptoms eased off, proving the med was working. My numbers and symptoms were stable for several years. Then, this endo retired around 7 years ago. I tried to see someone else when I was losing hair again massively, he tried to tell me to take 50mcg (2 tablets). It was too much and I experienced EVEN more hair loss. I stopped going to him, decided to stick with 1 tablet, and then self-medicated and went back and forth between 1 tablet and 1.5 tablets whenever my hair was falling out (this seemed to be a barometer). During all this time, I went to the GP to get the thyroid panel done and both Tg and TPO were stable, climbing gradually but in small increments, no obvious symptoms. I was the fittest I'd even been in my life, running 5km, 10km, jogged, did HIIT, did weight-training 5-6 days ago, went out everyday. Was healthy and happy. Then the vertigo hit me in Oct 2017 after I caught a viral infection. That was the beginning of my struggle. But then again, during beginning of 2018 and Dec 2021, as mentioned in the post just above this, that I regained most of my health and life; only to be struck down again after Pfizer and gained new symptoms, which were completely brand new to me.

I don't know exactly how Pfizer has done this to me, but I have read that mRNA vaccines, in the same way that the Covid virus does, cause a gross exacerbation of any underlying symptoms (which in my case are dizziness, vertigo, tinnitus) via a hyper over-reaction of my autoimmune system, which is the whole point of this mRNA technology, ie. the spike protein provoking antibodies, along with gifting me lovely (NOT) new symptoms. Other people, who were completely healthy prior, have also developed symptoms similar to some of mine, namely dizziness, vertigo, pins & needles/numbness of extremities etc. post-jab.

Anyway, long explanation as to why this new endo wants me to try this T3 only med/ supplement (how can you tell that this is a supplement and not a med?). Basically, Euthyrox is only T4 (as I am sure you already know) and maybe it's not being properly/all converted to T3. Hence, why the new endo wants me to take a mixture of NDT and Euthyrox. I don't think he was relying on my antibodies numbers but rather he'd had some reported improvements in symptoms with his other Hashi patients. I don't know if such a combo would help reduce my antibodies but was hoping that some of my symptoms would ease off. I still haven't started on this new T3-only "thing" yet.

What I have been trying to convey is that, while a naturopath can have a role in your health care, in your extreme situation, I don't know that they should play more of a role than a physician whose subspecialty matches your condition(s). MDs are all basically PCPs as a matter of the foundational training. However, the ones that further their medical education to pursue being an endocrinologist, orthpedic, gastrointerologist, cardiologist, etc. possess the advanced level training required for specific issues. You have special (specific) medical needs right now that require physician (MD) treatment/care/intervention. Please take this in the spirit in which I gently mean, but supplements can really EFF you up if you are taking them to address something that is not lacking- and especially if you have a condition that requires an advanced level of medical training to balance (again homeostasis). You having all of this inflammation, numbers gone berserk could also mean that the naturopath is put on a hold until your TEAM of conventional MDs can coordinate your care. I know you just want to feel better. But, since thyroids require such a delicate balance and play such a crucial role in our health, it may be best to think about supplements the way that you consider beef, histamines, and re-evaluate if "supplements" are the best way back to normal in this serious situation. Like, why are you back on magnesium if you don't have bloodwork validating that you need it? Who is telling you to take this?

This is NOT you, but there have been people (regular and famous) that were given a serious diagnosis and opted solely for natural remedies and it did not work out too well for them. With you feeling horrible enough that you had a hospital stay due to blood pressure spikes, then along with unintentional weight loss, thyroid panel way off, inflammation and all the other things that are making you feel unwell, please, please see medical doctor(s) (specialists) who will get the bottom of what is going on with you and provide targeted treatment so that you can heal. It is frustrating because it seems right now that no one is giving you definitive answers and you are suffering. You might hear something to the effect of, "your symptoms are non-specific." Why? Because dizziness, raised blood pressure, tingling, etc. can be caused by a number of reasons. But, you have to be your own advocate and continue to pursue, because the practice of medicine can often times be a process of ruling out before the absolute diagnosis or diagnoses can materialize.

 

[Gloria27]

This is about long covid but watch the last 30 seconds if not all.

 

[Phoenix]

This can be done with a blood test ordered by your PCP. They know to mark the ACTH on the form if testing for your pituitary gland hormone. These cortisol tests are best done in the morning, just so you know. Also, I asked if you were hypo or hyper thyroid because the label on the meds was for treating hypo thyroidism. I want to be careful here and not go too far regarding what should be medical advice. But, my opinion which is NOT a medical opinion is this: What you have pictured above are supplements which (because they are supplements) they have not been prescribed specifically by an endocrinologist. As you mentioned above, if the endo did NOT diagnose you with hypothyroidism, please re-examine why you would consider taking anything for that condition. I would agree that with a TSH of 0.55, it would seem that you are not hypo.

What I have been trying to convey is that, while a naturopath can have a role in your health care, in your extreme situation, I don't know that they should play more of a role than a physician whose subspecialty matches your condition(s). MDs are all basically PCPs as a matter of the foundational training. However, the ones that further their medical education to pursue being an endocrinologist, orthpedic, gastrointerologist, cardiologist, etc. possess the advanced level training required for specific issues. You have special (specific) medical needs right now that require physician (MD) treatment/care/intervention. Please take this in the spirit in which I gently mean, but supplements can really EFF you up if you are taking them to address something that is not lacking- and especially if you have a condition that requires an advanced level of medical training to balance (again homeostasis). You having all of this inflammation, numbers gone berserk could also mean that the naturopath is put on a hold until your TEAM of conventional MDs can coordinate your care. I know you just want to feel better. But, since thyroids require such a delicate balance and play such a crucial role in our health, it may be best to think about supplements the way that you consider beef, histamines, and re-evaluate if "supplements" are the best way back to normal in this serious situation. Like, why are you back on magnesium if you don't have bloodwork validating that you need it? Who is telling you to take this?

@luvmysparklies , I've spent sooo much money (six figures, multiplied by 2) in the last 5 years trying to find out the root cause(s) of my symptoms. I've seen numerous specialists, ie. ENTs (last count was 12), cardiologist, GI, respiratory specialist etc, done so many tests, you name it. Nobody can tell me what's wrong with me.

When I was in remission for the 3 years prior to the jab, I thought my symptoms and root causes were finally going away. Mind you, Hashi was always there and will always be there. But no vertigo for 3 whole years, dizziness was not so bad and no other obvious symptoms. So I breathed a sigh of relief. But still hesitated about the vaccine....well you know the rest of the story....

I saw this functional Dr when I was sick before, a person who was highly praised by many other patients that I know personally, a person who was fully booked almost all the time. She pushed for me to have so many supplements that I was super reluctant to take including super high Vit C (to bowel tolerance) and some sort of IV injections, both of which I refused. I am only taking a small amount of Vit C as too much can cause issues, including oxalate issues. She got me to take some other supplements which either didn't do anything or made me worse. I only saw her twice.

This naturopath that I am seeing is helping me run tests (like mycotoxins, environmental toxins). I would be approaching any detox plans with extreme caution. She's also having me take supplements for deficiencies as shown in my serum tests (like Vit D, B6). But as mentioned, I am proceeding with caution with B6 out of fear of toxicity. She also gets me to take B2, because I get broken/split mouth corners. Again, taking half of recommended dosage. We'll see if it helps before/if I decide to take more.

Methylated B12 seems to also be helping with mouth corners and my "cotton mouth" issue. I've been taking B12 forever, I don't remember how/why I started. Still borderline even though I am on this B12.

Vit D3+K2, I am taking 1000 IU a day. My own PCP wanted me to do 25000 IU a week Vit D (I am low) and IV B12 (as I am borderline) and I refused as I am sure a sudden surge of vitamin of any kind into my fragile body is not going to help, would prob push me right over the edge.

Magnesium glycinate and oxide, hmm, I've kinda self-medicated. I have BM issues, insomnia, joint and muscle pain - again much much much worse in the last 7 months. So thought I'd try it. Mind you, I took magnesium citrate and/or CALM for years, without any issues. I don't remember if it helped or not. I think it did a little. Totally off magnesium now. Too scared!!

Problem is that the population where I live is tiny, like 5.6mil. There's a definite lack of able specialists here. Right now, I am hoping the next endo will be able to help me figure out at least some of what's going on. The last one I just saw recently, looked at me blankly when I talked about my symptoms which are fairly typical of Hashi, ie. extremely dry eyes, dizziness and vertigo, tinnitus, joint and muscle pain, insomnia, constipation, tremors etc. I am also hoping that I am right that the Pfizer vaccine has magnified all my symptoms many many folds and hope that in time, all will calm down. But I will def look into my pituitary gland hormone. Gonna look into my female hormones too. I had the latter checked recently but don't really understand what I should do about them. Will schedule an appt with my gynae.

This is NOT you, but there have been people (regular and famous) that were given a serious diagnosis and opted solely for natural remedies and it did not work out too well for them. With you feeling horrible enough that you had a hospital stay due to blood pressure spikes, then along with unintentional weight loss, thyroid panel way off, inflammation and all the other things that are making you feel unwell, please, please see medical doctor(s) (specialists) who will get the bottom of what is going on with you and provide targeted treatment so that you can heal. It is frustrating because it seems right now that no one is giving you definitive answers and you are suffering. You might hear something to the effect of, "your symptoms are non-specific." Why? Because dizziness, raised blood pressure, tingling, etc. can be caused by a number of reasons. But, you have to be your own advocate and continue to pursue, because the practice of medicine can often times be a process of ruling out before the absolute diagnosis or diagnoses can materialize.

I have been trying to do that last 5 years. But it seems as if I jumped off a cliff in December last year.

Thank you sooo much for all your help and care. Please continue to help if you can. I am looking into all and any possibilities, to rule out as you said.

xoxo

 

[Phoenix]

This is about long covid but watch the last 30 seconds if not all.

This!! It's as if they're talking about me and my symptoms (except I've not caught Covid, touch wood), particularly when they talk about autoimmune cells.

I particularly like what the she says at 6.26 mins and onwards. She also says "inflammation" (bingo!!) and "temporarily"...hmm...it's been 7 months for me. Some people, I've read, are still suffering 1+ year post!

I'd love to see stories of people who have recovered, either totally or even mostly, be they Covid virus or vaccine-injured long haulers.

 

[Gloria27]

This!! It's as if they're talking about me and my symptoms (except I've not caught Covid, touch wood), particularly when they talk about autoimmune cells.

I particularly like what the she says at 6.26 mins and onwards. She also says "inflammation" (bingo!!) and "temporarily"...hmm...it's been 7 months for me. Some people, I've read, are still suffering 1+ year post!

I'd love to see stories of people who have recovered, either totally or even mostly, be they Covid virus or vaccine-injured long haulers.

Glad you find this is helpful in some way.

I was fine going through Covid, unexpectedly fine and had a quick recovery but hey, we are all different, you never know. Hubby had fatigue and slept a lot during and after the virus for a short while.

 

[Phoenix]

Glad you find this is helpful in some way.

I was fine going through Covid, unexpectedly fine and had a quick recovery but hey, we are all different, you never know. Hubby had fatigue and slept a lot during and after the virus for a short while.

Yep, like @kenny always says, people vary.

Glad you and your hubby are fine now.

One never really can tell how one can react. But I really should have known better, since I already had an autoimmune disease and inflammation. ...Should have resisted harder, consequences be d*mmed!

 

[luvmysparklies]

I shall ask my MD to run this. Surprising no one has told me about this, at all! Noted that it's done in the morning. This is by serum/blood drawn? I know there's some test for cortisol/ the adrenals that is done by saliva, at regular internals within a 24 hour timeframe.

Yes, it is blood drawn.

When I was tested for thyroid some 12 years ago, my then endo wouldn't give me any med as my TSH, T3 and T4 were within normal range (and they still are), even though I was having symptoms (weight gain that wouldn't shift), MASSIVE amounts of hair loss on a daily basis, insomnia, BM issues etc. And my antibodies were slightly elevated, at 200-400 Tg (I think) and just around 50-60 TPO. I begged and she finally relented and prescribed Euthyrox 12.5mcg (half of a 25mcg tablet). My antibodies numbers went up in the following years, gradually but surely. But my symptoms eased off, proving the med was working. My numbers and symptoms were stable for several years. Then, this endo retired around 7 years ago. I tried to see someone else when I was losing hair again massively, he tried to tell me to take 50mcg (2 tablets). It was too much and I experienced EVEN more hair loss. I stopped going to him, decided to stick with 1 tablet, and then self-medicated and went back and forth between 1 tablet and 1.5 tablets whenever my hair was falling out (this seemed to be a barometer). During all this time, I went to the GP to get the thyroid panel done and both Tg and TPO were stable, climbing gradually but in small increments, no obvious symptoms. I was the fittest I'd even been in my life, running 5km, 10km, jogged, did HIIT, did weight-training 5-6 days ago, went out everyday. Was healthy and happy. Then the vertigo hit me in Oct 2017 after I caught a viral infection. That was the beginning of my struggle. But then again, during beginning of 2018 and Dec 2021, as mentioned in the post just above this, that I regained most of my health and life; only to be struck down again after Pfizer and gained new symptoms, which were completely brand new to me.

I don't know exactly how Pfizer has done this to me, but I have read that mRNA vaccines, in the same way that the Covid virus does, cause a gross exacerbation of any underlying symptoms (which in my case are dizziness, vertigo, tinnitus) via a hyper over-reaction of my autoimmune system, which is the whole point of this mRNA technology, ie. the spike protein provoking antibodies, along with gifting me lovely (NOT) new symptoms. Other people, who were completely healthy prior, have also developed symptoms similar to some of mine, namely dizziness, vertigo, pins & needles/numbness of extremities etc. post-jab.

Anyway, long explanation as to why this new endo wants me to try this T3 only med/ supplement (how can you tell that this is a supplement and not a med?). Basically, Euthyrox is only T4 (as I am sure you already know) and maybe it's not being properly/all converted to T3. Hence, why the new endo wants me to take a mixture of NDT and Euthyrox. I don't think he was relying on my antibodies numbers but rather he'd had some reported improvements in symptoms with his other Hashi patients. I don't know if such a combo would help reduce my antibodies but was hoping that some of my symptoms would ease off. I still haven't started on this new T3-only "thing" yet.

Have you ever had a thyroid uptake scan ordered by your endo (any of them)? It is a diagnostic test that tests the general functioning of your thyroid. You are so sensitive right now, but I wondered if you have had this in the past.

 

[Phoenix]

Yes, it is blood drawn.

Have you ever had a thyroid uptake scan ordered by your endo (any of them)? It is a diagnostic test that tests the general functioning of your thyroid. You are so sensitive right now, but I wondered if you have had this in the past.

Wow. Will ask my PCP.

I didn't even know there was such a thing as a thyroid uptake scan. No, no one has ever even mentioned it, nor have I ever heard of it til now.

I just googled it. You have to swallow a radioactive substance for this?

I really am super sensitive right now.

 

[luvmysparklies]

@luvmysparklies , I've spent sooo much money (six figures, multiplied by 2) in the last 5 years trying to find out the root cause(s) of my symptoms. I've seen numerous specialists, ie. ENTs (last count was 12), cardiologist, GI, respiratory specialist etc, done so many tests, you name it. Nobody can tell me what's wrong with me.

Things can get lost in so many replies back and forth, so I want to reiterate that the doc run a parathyroid hormone test. It is a blood test and the doc simply checks this off.

When I was in remission for the 3 years prior to the jab, I thought my symptoms and root causes were finally going away. Mind you, Hashi was always there and will always be there. But no vertigo for 3 whole years, dizziness was not so bad and no other obvious symptoms. So I breathed a sigh of relief. But still hesitated about the vaccine....well you know the rest of the story....

I saw this functional Dr when I was sick before, a person who was highly praised by many other patients that I know personally, a person who was fully booked almost all the time. She pushed for me to have so many supplements that I was super reluctant to take including super high Vit C (to bowel tolerance) and some sort of IV injections, both of which I refused. I am only taking a small amount of Vit C as too much can cause issues, including oxalate issues. She got me to take some other supplements which either didn't do anything or made me worse. I only saw her twice.

This naturopath that I am seeing is helping me run tests (like mycotoxins, environmental toxins). I would be approaching any detox plans with extreme caution. She's also having me take supplements for deficiencies as shown in my serum tests (like Vit D, B6). But as mentioned, I am proceeding with caution with B6 out of fear of toxicity. She also gets me to take B2, because I get broken/split mouth corners. Again, taking half of recommended dosage. We'll see if it helps before/if I decide to take more.

I am glad that for these vitamins/supplements that there was a definite need since you were shown to be deficient. (I am not happy about your deficiency! Just that there is justification)....

Methylated B12 seems to also be helping with mouth corners and my "cotton mouth" issue. I've been taking B12 forever, I don't remember how/why I started. Still borderline even though I am on this B12.

Vit D3+K2, I am taking 1000 IU a day. My own PCP wanted me to do 25000 IU a week Vit D (I am low) and IV B12 (as I am borderline) and I refused as I am sure a sudden surge of vitamin of any kind into my fragile body is not going to help, would prob push me right over the edge.

Magnesium glycinate and oxide, hmm, I've kinda self-medicated. I have BM issues, insomnia, joint and muscle pain - again much much much worse in the last 7 months. So thought I'd try it. Mind you, I took magnesium citrate and/or CALM for years, without any issues. I don't remember if it helped or not. I think it did a little. Totally off magnesium now. Too scared!!

I am glad you are off the magnesium, especially if blood tests don't show that you need it. For the joint and muscle pain, I wonder if you might if you might try the food as medicine approach, as I like to call it to reduce your inflammation and provide support to the joints. Broccoli, cauliflower, garlic, onion, salmon using olive oil. Turmeric and ginger, good for anti inflammation and joint support. Gelatin mixed in with a healthy fruit or veggie smoothie. Broccoli and cauliflower and flax seeds all will help regulate BM functioning without throwing any of your other levels into further disarray. When you have had years of no diagnosis as to what exactly the problem is, it leads to you trying on your own different remedies. Just keep in mind that deriving the benefits from the food source, preferably organic, (the foods that you can tolerate right now) is going to be way better for you. You typically won't overdose on any vitamin, mineral using the foods. Your inflammation needs to come down. Early on, I did suggest bone broth because it contains high levels of anti-inflammatory properties and the gelatin would help with your joints. But, I understand the histamine fears so I wanted to offer up other alternative food sources.

Problem is that the population where I live is tiny, like 5.6mil. There's a definite lack of able specialists here. Right now, I am hoping the next endo will be able to help me figure out at least some of what's going on. The last one I just saw recently, looked at me blankly when I talked about my symptoms which are fairly typical of Hashi, ie. extremely dry eyes, dizziness and vertigo, tinnitus, joint and muscle pain, insomnia, constipation, tremors etc. I am also hoping that I am right that the Pfizer vaccine has magnified all my symptoms many many folds and hope that in time, all will calm down. But I will def look into my pituitary gland hormone. Gonna look into my female hormones too. I had the latter checked recently but don't really understand what I should do about them. Will schedule an appt with my gynae.

I wanted to address the NDT. I called it a supplement, but should have simply said that it is naturally derived rather than synthetic. When I wrote the response, I just could not reconcile why your naturopath was recommending this when it states clearly on the label that it is to treat hypo, not hyper thyroidism.

Also, regarding the NDT, Cleveland Clinic in the US is a highly regarded treatment facility and people travel from many areas of the world to get treatment here. I did a quick internet search and I am going to link to the page addressing NDT so that you can see the original source. I noticed that some of the side effects listed are the exact things you are suffering from. Not only is the NDT for hypo thyroidism, but if it is also known to trigger the same symptoms you are currently experiencing, just consider that. In determining who should take NDT, it is also noted on this page that the doc needs to be made aware if there is a pituitary gland issue.

Thyroid Capsules or Tablets

my.clevelandclinic.org

I will copy and paste some of the info:

What side effects may I notice from receiving this medicine?​

Side effects that you should report to your doctor or health care professional as soon as possible:

• allergic reactions like skin rash, itching or hives, swelling of the face, lips, or tongue
• anxious
• breathing problems
• changes in menstrual periods
• chest pain
• diarrhea
• excessive sweating or intolerance to heat
• fast or irregular heartbeat
• leg cramps
• nervousness
• swelling of ankles, feet, or legs
• tremors
• trouble sleeping
• vomiting

Side effects that usually do not require medical attention (report to your doctor or health care professional if they continue or are bothersome):

• changes in appetite
• headache
• irritable
• nausea
• weight loss

What should I tell my health care provider before I take this medicine?​

They need to know if you have any of these conditions:

• Addison's disease or other adrenal gland problem
• angina
• bone problems
• diabetes
• dieting or on a weight loss program
• fertility problems
• heart disease
• pituitary gland problem
• take medicines that treat or prevent blood clots
• an unusual or allergic reaction to levothyroxine, thyroid hormones, other medicines, foods, dyes, or preservatives
• pregnant or trying to get pregnant
• breast-feeding

I have been trying to do that last 5 years. But it seems as if I jumped off a cliff in December last year.

Thank you sooo much for all your help and care. Please continue to help if you can. I am looking into all and any possibilities, to rule out as you said.

xoxo

I am right here. Will continue to encourage and try to assist! Also, I wanted to edit this to add that these suggestions are to help rule out and give you clues that your PCP can follow up on to get to the bottom of what is going on with you. I do recognize that you have experienced an exacerbation of your issues since receiving the shot. I am not trying to suggest anything otherwise, only targeting what is going on with you and help to (responsibly) explore how to get you some relief.

 

[luvmysparklies]

Wow. Will ask my PCP.

I didn't even know there was such a thing as a thyroid uptake scan. No, no one has ever even mentioned it, nor have I ever heard of it til now.

I just googled it. You have to swallow a radioactive substance for this?

I really am super sensitive right now.

An ultrasound can also be used to identify physical issues affecting the thyroid and its function and would also help to determine if there is a parathyroid gland enlargement. The ultrasound is quite sensitive and accurate and in conjunction with the parathyroid hormone test (PTH) will identify if you have a parathyroid gland producing too much hormone, which can also be a culprit to your prolonged symptomatic experiences (tingling, dizzy, heart rate, etc.). Also, too much PTH will elevate your blood calcium levels, which can cause issues. Blood calcium levels are part of a comprehensive metabolic panel (CMP) blood test. I am suggesting this blood test and the ultrasound for both your thyroid and your parathyroid glands because as noted in the video graciously provided by @Gloria27 the exacerbation of your autoimmune issues was supposed to be temporary in nature. So since this is dragging on, there needs to be tests to either rule out or identify why this is prolonged. You would be able to undergo the blood test and an ultrasound without triggering anything.

 

[Phoenix]

@luvmysparklies ,

Thank you sooo much once again for your incredible and helpful advice.

Let me see if I understand what you've said. Brain fog here, lol.

From last week's MRI test result, my PCP (who's had a chance to look at the results I emailed him) says the disc at c5 level is pinching my spine - this could cause vertigo and dizziness, as well shoulder/neck/arm pain and pins & needles in legs and arms. Should I still do an MRA? If so, can I ask for no contrast? I should ask to see a neurologist for all this, right?

When you say peripheral vertigo, do you mean Meniere's? I've had all kinds of tests done at ENT's and they couldn't find anything wrong with my inner/middle ear. Also, I've had Epley M done on me like 10-12 times at different occasions, all to no avail.

I should ask for my PCP for an ACTH test AND a Parathyroid Hormone Test (PHT) too, to see if there's anything wrong with my pituitary gland, correct? We're trying to understand if there's anything that might throw my homeostasis off balance, literally, correct? Also, an ultrasound of the thyroid should be done now (the uptake scan can wait for now, correct?), to see if there's anything physically or pathophysiological wrong with the thyroid, for example nodules or inflammation or even God forbit, cancer. That's what we're looking for, right?

I am also trying to figure out why I am suddenly (last 2-3 months) developing histamine intolerance, as well as oxalate and salicylate issues. This is why I've lost like 12-13lbs. There are so many things I cannot eat!! This HI is making my dizziness worse!

 

[Phoenix]

[@luvmysparklies, An ultrasound can also be used to identify physical issues affecting the thyroid and its function and would also help to determine if there is a parathyroid gland enlargement. The ultrasound is quite sensitive and accurate and in conjunction with the parathyroid hormone test (PTH) will identify if you have a parathyroid gland producing too much hormone, which can also be a culprit to your prolonged symptomatic experiences (tingling, dizzy, heart rate, etc.). Also, too much PTH will elevate your blood calcium levels, which can cause issues. Blood calcium levels are part of a comprehensive metabolic panel (CMP) blood test. I am suggesting this blood test and the ultrasound for both your thyroid and your parathyroid glands because as noted in the video graciously provided by @Gloria27 the exacerbation of your autoimmune issues was supposed to be temporary in nature. So since this is dragging on, there needs to be tests to either rule out or identify why this is prolonged. You would be able to undergo the blood test and an ultrasound without triggering anything.]

I've had my calcium level tested and it's within normal range. It's 2.41. not sure what the range is but it's supposed to be within range.

My creatine Kinase is elevated though, at 316 (again, not sure what's the range, the rest result doesn't say).

I've scheduled an appt on Tues next week to go through all these with my PCP and to ask for the tests you've suggested.

Thank youuuuuuu!! I shall keep you posted.

 

[luvmysparklies]

@luvmysparklies ,

Thank you sooo much once again for your incredible and helpful advice.

Let me see if I understand what you've said. Brain fog here, lol.

From last week's MRI test result, my PCP (who's had a chance to look at the results I emailed him) says the disc at c5 level is pinching my spine - this could cause vertigo and dizziness, as well shoulder/neck/arm pain and pins & needles in legs and arms. Should I still do an MRA? If so, can I ask for no contrast? I should ask to see a neurologist for all this, right?

Ok, this is good that you have received the interpretation of the MRI findings. No need for an MRA. Just to answer, yes you could have asked for no contrast, but the contrast "lights up" where the problems are better than without. But, I understand that you'd like to avoid contrast with everything going on with you right now. Now that it is confirmed that you have what is medically termed as "nerve impingement" your PCP is mostly right. At the C5-C6 level is where we get the most wear and tear as it is the main area that we use to bend and turn our heads. A pinched nerve at this location can very much cause the pins/needles feeling as well as vertigo and headaches. However, the C5 is responsible for the shoulders, your upper arms and your forearms. Meaning the sensations that you feel in these areas stem from the C5 disc. All of the areas that your PCP identified as being affected are correct except for the legs. The "C" in C5 stands for the cervical (the head/neck) part of your spine. That means C1-C7 (the C7, you can feel that boney protrusion at the back of your neck when you bend down--that is C7). Then we go down to the thoracic spine T1-T12 right after C7 down to the bottom of your ribcage. For the tingling in the legs you would have to test (probably another MRI) your lower spine, which is your lumbar spine L1-L5. This area and your sciatic nerve are the places to focus on to see what is causing your leg issues/tingling. Each section of your spine is responsible for different parts of your body. So, the C5 cannot be responsible for leg issues. Yes, a neurologist in conjunction with an orthopedic doc are your go-to physicians for these issues.

When you say peripheral vertigo, do you mean Meniere's? I've had all kinds of tests done at ENT's and they couldn't find anything wrong with my inner/middle ear. Also, I've had Epley M done on me like 10-12 times at different occasions, all to no avail.

Peripheral vertigo is vertigo that is attributed to an inner ear issue. I was not alluding to Meniere's but Meniere's is one of about 6 inner ear diagnoses that can be responsible for dizziness. An ENT will be able to test for all of them.

I should ask for my PCP for an ACTH test AND a Parathyroid Hormone Test (PHT) too, to see if there's anything wrong with my pituitary gland, correct? We're trying to understand if there's anything that might throw my homeostasis off balance, literally, correct? Also, an ultrasound of the thyroid should be done now (the uptake scan can wait for now, correct?), to see if there's anything physically or pathophysiological wrong with the thyroid, for example nodules or inflammation or even God forbit, cancer. That's what we're looking for, right?

No, the ACTH blood test is for the pituitary gland, which if there are issues with it, could cause dizziness. However, it seems that now your PCP has gotten interpretation of the MRI and you have a pinched nerve at C5 confirmed as attributable to your dizziness. The Parathyroid Hormone Test was to check to see if all of your parathyroid glands are outputting the correct levels of hormone. If they are not, you would definitely have elevated calcium levels. When I mentioned the calcium levels, it was a roundabout way to see if the parathyroid glands were problematic. If you simply want to double check to make sure that your parathyroid hormone levels are fine, the doc could check off this test as part of your labs. But, if calcium levels are normal, that really may not be necessary.

You are correct about the ultrasound. I did suggest a thyroid ultrasound in lieu of the uptake scan due to your sensitivity right now, and to determine if you have any nodules. Sometimes very large nodules will cause your thyroid to produce too much thyroxine which in turn can also be attributable to some of your symptoms (weight loss, tremors, etc.). If nodules are found and they are of note, you would need to then follow up by getting them aspirated to test pathology. Aspirated just means that a tiny needle is put in them to extract sample for testing.

I am also trying to figure out why I am suddenly (last 2-3 months) developing histamine intolerance, as well as oxalate and salicylate issues. This is why I've lost like 12-13lbs. There are so many things I cannot eat!! This HI is making my dizziness worse!

I would imagine that with your HI issues it is having an impact on what you can actually eat, which may in turn mean that you are not eating enough....which may also exacerbate dizziness, weight loss, etc.. Ugh...I am hoping that you can get to the bottom of everything! But we have a "win" in getting your MRI interpreted. This is part of the process of ruling out and identifying to get you closer to sustained healing!

 

[luvmysparklies]

[@luvmysparklies, An ultrasound can also be used to identify physical issues affecting the thyroid and its function and would also help to determine if there is a parathyroid gland enlargement. The ultrasound is quite sensitive and accurate and in conjunction with the parathyroid hormone test (PTH) will identify if you have a parathyroid gland producing too much hormone, which can also be a culprit to your prolonged symptomatic experiences (tingling, dizzy, heart rate, etc.). Also, too much PTH will elevate your blood calcium levels, which can cause issues. Blood calcium levels are part of a comprehensive metabolic panel (CMP) blood test. I am suggesting this blood test and the ultrasound for both your thyroid and your parathyroid glands because as noted in the video graciously provided by @Gloria27 the exacerbation of your autoimmune issues was supposed to be temporary in nature. So since this is dragging on, there needs to be tests to either rule out or identify why this is prolonged. You would be able to undergo the blood test and an ultrasound without triggering anything.]

I've had my calcium level tested and it's within normal range. It's 2.41. not sure what the range is but it's supposed to be within range.

My creatine Kinase is elevated though, at 316 (again, not sure what's the range, the rest result doesn't say).

I've scheduled an appt on Tues next week to go through all these with my PCP and to ask for the tests you've suggested.

Thank youuuuuuu!! I shall keep you posted.

That number suggests that your calcium levels are within normal range.
With your thyroid issues right now, it can affect creatine levels. Your doc will be able to make determinations and the right referrals based on the testing you will have.

 

[Phoenix]

Ok, this is good that you have received the interpretation of the MRI findings. No need for an MRA. Just to answer, yes you could have asked for no contrast, but the contrast "lights up" where the problems are better than without. But, I understand that you'd like to avoid contrast with everything going on with you right now. Now that it is confirmed that you have what is medically termed as "nerve impingement" your PCP is mostly right. At the C5-C6 level is where we get the most wear and tear as it is the main area that we use to bend and turn our heads. A pinched nerve at this location can very much cause the pins/needles feeling as well as vertigo and headaches. However, the C5 is responsible for the shoulders, your upper arms and your forearms. Meaning the sensations that you feel in these areas stem from the C5 disc. All of the areas that your PCP identified as being affected are correct except for the legs. The "C" in C5 stands for the cervical (the head/neck) part of your spine. That means C1-C7 (the C7, you can feel that boney protrusion at the back of your neck when you bend down--that is C7). Then we go down to the thoracic spine T1-T12 right after C7 down to the bottom of your ribcage. For the tingling in the legs you would have to test (probably another MRI) your lower spine, which is your lumbar spine L1-L5. This area and your sciatic nerve are the places to focus on to see what is causing your leg issues/tingling. Each section of your spine is responsible for different parts of your body. So, the C5 cannot be responsible for leg issues. Yes, a neurologist in conjunction with an orthopedic doc are your go-to physicians for these issues.

Ah ok, makes a lot of sense. A few bones on the neck are not going to be responsible for everything. It has to be something or things lower down the spine that'd be responsible for the pins&needles, cramps and weakness in my legs. This weakness is what concerns me the most. I feel like my legs are gonna buckle, after standing or walking just for a few minutes. This issue, i"ve had for a few years, but lately, it's been really bad. Even just standing for a couple of minutes, I get blood pooling!

Ok, gonna get referral for a neurologist as well as an orthopedic. Noted. Thank you so much.

Peripheral vertigo is vertigo that is attributed to an inner ear issue. I was not alluding to Meniere's but Meniere's is one of about 6 inner ear diagnoses that can be responsible for dizziness. An ENT will be able to test for all of them.

No, the ACTH blood test is for the pituitary gland, which if there are issues with it, could cause dizziness. However, it seems that now your PCP has gotten interpretation of the MRI and you have a pinched nerve at C5 confirmed as attributable to your dizziness. The Parathyroid Hormone Test was to check to see if all of your parathyroid glands are outputting the correct levels of hormone. If they are not, you would definitely have elevated calcium levels. When I mentioned the calcium levels, it was a roundabout way to see if the parathyroid glands were problematic. If you simply want to double check to make sure that your parathyroid hormone levels are fine, the doc could check off this test as part of your labs. But, if calcium levels are normal, that really may not be necessary.

You are correct about the ultrasound. I did suggest a thyroid ultrasound in lieu of the uptake scan due to your sensitivity right now, and to determine if you have any nodules. Sometimes very large nodules will cause your thyroid to produce too much thyroxine which in turn can also be attributable to some of your symptoms (weight loss, tremors, etc.). If nodules are found and they are of note, you would need to then follow up by getting them aspirated to test pathology. Aspirated just means that a tiny needle is put in them to extract sample for testing.

I would imagine that with your HI issues it is having an impact on what you can actually eat, which may in turn mean that you are not eating enough....which may also exacerbate dizziness, weight loss, etc.. Ugh...I am hoping that you can get to the bottom of everything! But we have a "win" in getting your MRI interpreted. This is part of the process of ruling out and identifying to get you closer to sustained healing!

 

[Phoenix]

Ok, this is good that you have received the interpretation of the MRI findings. No need for an MRA. Just to answer, yes you could have asked for no contrast, but the contrast "lights up" where the problems are better than without. But, I understand that you'd like to avoid contrast with everything going on with you right now. Now that it is confirmed that you have what is medically termed as "nerve impingement" your PCP is mostly right. At the C5-C6 level is where we get the most wear and tear as it is the main area that we use to bend and turn our heads. A pinched nerve at this location can very much cause the pins/needles feeling as well as vertigo and headaches. However, the C5 is responsible for the shoulders, your upper arms and your forearms. Meaning the sensations that you feel in these areas stem from the C5 disc. All of the areas that your PCP identified as being affected are correct except for the legs. The "C" in C5 stands for the cervical (the head/neck) part of your spine. That means C1-C7 (the C7, you can feel that boney protrusion at the back of your neck when you bend down--that is C7). Then we go down to the thoracic spine T1-T12 right after C7 down to the bottom of your ribcage. For the tingling in the legs you would have to test (probably another MRI) your lower spine, which is your lumbar spine L1-L5. This area and your sciatic nerve are the places to focus on to see what is causing your leg issues/tingling. Each section of your spine is responsible for different parts of your body. So, the C5 cannot be responsible for leg issues. Yes, a neurologist in conjunction with an orthopedic doc are your go-to physicians for these issues.


Peripheral vertigo is vertigo that is attributed to an inner ear issue. I was not alluding to Meniere's but Meniere's is one of about 6 inner ear diagnoses that can be responsible for dizziness. An ENT will be able to test for all of them.

I am going to break down your answer and mine into different sections, for (my) ease of reference. It seems like I am having brain fog. 2 post-grad qualifications don't seem to mean much now. In fact, I wonder how on earth I managed to do them, lol.

I was checked for Meniere's and other inner ear issues. Had so many tests done. But I can go and see another one and see what he/she has to say. I feel like my issues are more nerve-related and not so much related to my inner (left) ear. I mean for eg when they checked for nystagmus, some said they saw a little, some said none, some said more on the right side but my left ear is the problematic one. They've been blown hot air into my ear, inducing vertigo (room spinning) but even that, along with numerous other tests, only produced a negative outcome for inner ear issues.

No, the ACTH blood test is for the pituitary gland, which if there are issues with it, could cause dizziness. However, it seems that now your PCP has gotten interpretation of the MRI and you have a pinched nerve at C5 confirmed as attributable to your dizziness. The Parathyroid Hormone Test was to check to see if all of your parathyroid glands are outputting the correct levels of hormone. If they are not, you would definitely have elevated calcium levels. When I mentioned the calcium levels, it was a roundabout way to see if the parathyroid glands were problematic. If you simply want to double check to make sure that your parathyroid hormone levels are fine, the doc could check off this test as part of your labs. But, if calcium levels are normal, that really may not be necessary.

You are correct about the ultrasound. I did suggest a thyroid ultrasound in lieu of the uptake scan due to your sensitivity right now, and to determine if you have any nodules. Sometimes very large nodules will cause your thyroid to produce too much thyroxine which in turn can also be attributable to some of your symptoms (weight loss, tremors, etc.). If nodules are found and they are of note, you would need to then follow up by getting them aspirated to test pathology. Aspirated just means that a tiny needle is put in them to extract sample for testing.

I would imagine that with your HI issues it is having an impact on what you can actually eat, which may in turn mean that you are not eating enough....which may also exacerbate dizziness, weight loss, etc.. Ugh...I am hoping that you can get to the bottom of everything! But we have a "win" in getting your MRI interpreted. This is part of the process of ruling out and identifying to get you closer to sustained healing!

 

[Phoenix]

Ok, this is good that you have received the interpretation of the MRI findings. No need for an MRA. Just to answer, yes you could have asked for no contrast, but the contrast "lights up" where the problems are better than without. But, I understand that you'd like to avoid contrast with everything going on with you right now. Now that it is confirmed that you have what is medically termed as "nerve impingement" your PCP is mostly right. At the C5-C6 level is where we get the most wear and tear as it is the main area that we use to bend and turn our heads. A pinched nerve at this location can very much cause the pins/needles feeling as well as vertigo and headaches. However, the C5 is responsible for the shoulders, your upper arms and your forearms. Meaning the sensations that you feel in these areas stem from the C5 disc. All of the areas that your PCP identified as being affected are correct except for the legs. The "C" in C5 stands for the cervical (the head/neck) part of your spine. That means C1-C7 (the C7, you can feel that boney protrusion at the back of your neck when you bend down--that is C7). Then we go down to the thoracic spine T1-T12 right after C7 down to the bottom of your ribcage. For the tingling in the legs you would have to test (probably another MRI) your lower spine, which is your lumbar spine L1-L5. This area and your sciatic nerve are the places to focus on to see what is causing your leg issues/tingling. Each section of your spine is responsible for different parts of your body. So, the C5 cannot be responsible for leg issues. Yes, a neurologist in conjunction with an orthopedic doc are your go-to physicians for these issues.


Peripheral vertigo is vertigo that is attributed to an inner ear issue. I was not alluding to Meniere's but Meniere's is one of about 6 inner ear diagnoses that can be responsible for dizziness. An ENT will be able to test for all of them.

No, the ACTH blood test is for the pituitary gland, which if there are issues with it, could cause dizziness. However, it seems that now your PCP has gotten interpretation of the MRI and you have a pinched nerve at C5 confirmed as attributable to your dizziness. The Parathyroid Hormone Test was to check to see if all of your parathyroid glands are outputting the correct levels of hormone. If they are not, you would definitely have elevated calcium levels. When I mentioned the calcium levels, it was a roundabout way to see if the parathyroid glands were problematic. If you simply want to double check to make sure that your parathyroid hormone levels are fine, the doc could check off this test as part of your labs. But, if calcium levels are normal, that really may not be necessary.

Ok, this is good that you have received the interpretation of the MRI findings. No need for an MRA. Just to answer, yes you could have asked for no contrast, but the contrast "lights up" where the problems are better than without. But, I understand that you'd like to avoid contrast with everything going on with you right now. Now that it is confirmed that you have what is medically termed as "nerve impingement" your PCP is mostly right. At the C5-C6 level is where we get the most wear and tear as it is the main area that we use to bend and turn our heads. A pinched nerve at this location can very much cause the pins/needles feeling as well as vertigo and headaches. However, the C5 is responsible for the shoulders, your upper arms and your forearms. Meaning the sensations that you feel in these areas stem from the C5 disc. All of the areas that your PCP identified as being affected are correct except for the legs. The "C" in C5 stands for the cervical (the head/neck) part of your spine. That means C1-C7 (the C7, you can feel that boney protrusion at the back of your neck when you bend down--that is C7). Then we go down to the thoracic spine T1-T12 right after C7 down to the bottom of your ribcage. For the tingling in the legs you would have to test (probably another MRI) your lower spine, which is your lumbar spine L1-L5. This area and your sciatic nerve are the places to focus on to see what is causing your leg issues/tingling. Each section of your spine is responsible for different parts of your body. So, the C5 cannot be responsible for leg issues. Yes, a neurologist in conjunction with an orthopedic doc are your go-to physicians for these issues.

Peripheral vertigo is vertigo that is attributed to an inner ear issue. I was not alluding to Meniere's but Meniere's is one of about 6 inner ear diagnoses that can be responsible for dizziness. An ENT will be able to test for all of them.

No, the ACTH blood test is for the pituitary gland, which if there are issues with it, could cause dizziness. However, it seems that now your PCP has gotten interpretation of the MRI and you have a pinched nerve at C5 confirmed as attributable to your dizziness. The Parathyroid Hormone Test was to check to see if all of your parathyroid glands are outputting the correct levels of hormone. If they are not, you would definitely have elevated calcium levels. When I mentioned the calcium levels, it was a roundabout way to see if the parathyroid glands were problematic. If you simply want to double check to make sure that your parathyroid hormone levels are fine, the doc could check off this test as part of your labs. But, if calcium levels are normal, that really may not be necessary.

OK. So no ACTH blood test anymore? just the PHT? I was reading something about the pineal gland affecting my sleep. I've been suffering very badly from insomnia and can now only sleep by taking sleeping pills!

My calcium level, I am not sure is optimal though, as it is it going to the right places? I know I have bone spurs which may indicate that my functional calcium level is low.

(Admin, pls can we have a PM function? I am telling the whole world about my personal issues here!!).

You are correct about the ultrasound. I did suggest a thyroid ultrasound in lieu of the uptake scan due to your sensitivity right now, and to determine if you have any nodules. Sometimes very large nodules will cause your thyroid to produce too much thyroxine which in turn can also be attributable to some of your symptoms (weight loss, tremors, etc.). If nodules are found and they are of note, you would need to then follow up by getting them aspirated to test pathology. Aspirated just means that a tiny needle is put in them to extract sample for testing.

I don't see nor feel any lumps on my neck. But will def do an ultrasound. It's harmless enough.

I would imagine that with your HI issues it is having an impact on what you can actually eat, which may in turn mean that you are not eating enough....which may also exacerbate dizziness, weight loss, etc.. Ugh...I am hoping that you can get to the bottom of everything! But we have a "win" in getting your MRI interpreted. This is part of the process of ruling out and identifying to get you closer to sustained healing!

Yesss!! I am eating way less than I used to, cuz of HI/oxalate/salicylate issues. All shellfish are out, a lot of fruits are out, so is beef etc. I am shrinking before my very own eyes.

I really hope so!! I shall keep you updated on the follow up on my MRI results. Actually, might you have any idea how/why I have a nerve impingement issue? Could it have been from lifting too heavy a weight or lifting it wrongly? Or is that just a normal part of ageing?

Re bone broth, I shall follow that religiously, but I am being careful also not to have leftovers due to HI issues. Gelatin, I read, is somehow problematic for *me*. I was actually on birds' nest and then I switched to collagen powder, then I stopped (again I can't remember why, lol). Shall have to look that up again.

You are correct about the ultrasound. I did suggest a thyroid ultrasound in lieu of the uptake scan due to your sensitivity right now, and to determine if you have any nodules. Sometimes very large nodules will cause your thyroid to produce too much thyroxine which in turn can also be attributable to some of your symptoms (weight loss, tremors, etc.). If nodules are found and they are of note, you would need to then follow up by getting them aspirated to test pathology. Aspirated just means that a tiny needle is put in them to extract sample for testing.

I would imagine that with your HI issues it is having an impact on what you can actually eat, which may in turn mean that you are not eating enough....which may also exacerbate dizziness, weight loss, etc.. Ugh...I am hoping that you can get to the bottom of everything! But we have a "win" in getting your MRI interpreted. This is part of the process of ruling out and identifying to get you closer to sustained healing!

Thank you sooo much, @luvmysparklies , once again. xoxo

 

[Phoenix]

@luvmysparklies , I am going to see a cervical chiropractor next week. Apparently, he's the only cervical chiro in SG. I am excited but at the same time nervous. I am usually very reluctant to let anyone work on my neck, as you can understand. Next week will, I expect, just be a consultation and I am bringing my MRI results with me to show him.

(Again, Admin, pls introduce a PM function!! thank you).

 

[luvmysparklies]

Ah ok, makes a lot of sense. A few bones on the neck are not going to be responsible for everything. It has to be something or things lower down the spine that'd be responsible for the pins&needles, cramps and weakness in my legs. This weakness is what concerns me the most. I feel like my legs are gonna buckle, after standing or walking just for a few minutes. This issue, i"ve had for a few years, but lately, it's been really bad. Even just standing for a couple of minutes, I get blood pooling!

Ok, gonna get referral for a neurologist as well as an orthopedic. Noted. Thank you so much.

Perfect! Make sure you tell both doctors about your leg symptoms.

 

[luvmysparklies]

I am going to break down your answer and mine into different sections, for (my) ease of reference. It seems like I am having brain fog. 2 post-grad qualifications don't seem to mean much now. In fact, I wonder how on earth I managed to do them, lol.

I was checked for Meniere's and other inner ear issues. Had so many tests done. But I can go and see another one and see what he/she has to say. I feel like my issues are more nerve-related and not so much related to my inner (left) ear. I mean for eg when they checked for nystagmus, some said they saw a little, some said none, some said more on the right side but my left ear is the problematic one. They've been blown hot air into my ear, inducing vertigo (room spinning) but even that, along with numerous other tests, only produced a negative outcome for inner ear issues.

For your privacy, so you don't have to put everything down here, just make a Judgement about going to see another ENT based on how long ago the above results were. If you are satisfied that inner ear issues have been sufficiently ruled out, continue to pursue the neurologist and orthopedic doctor.