- Joined
- May 27, 2009
- Messages
- 2,396
Quick update
MY aunt does seem to be improving. We are waiting to hear when she will have transport back to the nursing home.t
Thanks so much for your support. It helps knowing we are not alone.
Thank you @KaeKae junebug and @tyty333 and all others who paused in their busy days to send kind thoughts my way.
I don't have much to say except thank you for listening and it was so nice to be able to say some things here--no one knows me here and no one knows my parents, so I don't have to smile when, for example, people tell me what a great cook my mother is when she hasn't been for years. I am not close with either of my folks, and I don't know them well, but my dad was wasting away in front of our eyes, and my mom let it happen. He has dementia (unspecified, another thing that drives me nuts is she sees no need to look into his diagnoses, but finds her own absorbing) and whenever we visited, I could see it might take him two or three hours to simply make his own breakfast, just put milk and dry cereal in a bowl and eat it. He had a good appetite, so would eat what we put in front of him, (both my husband and I cook and grill) but it took him soooooo lonnnnnnng to eat 3 or 4 ounces of meat, a cup of mashed p, a half cup of steamed broccoli/similar. He was never a heavy man, but had maintained a weight of 156 pounds for many years, and now he was under 130 pounds. His blood pressure would drop to 59 over I don't remember, which my mom would know because she would take his blood pressure, and then talk about how he fell in her arms and she would have to call 911. I wanted her to talk to a doctor about it, it seemed like dangerously low blood pressure to me, and of course, "follow up on low blood pressure with physician on record" was printed on every page of every set of discharge papers she was handed when leaving the emergency room with him, but she would use smile at me and say he was much improved when I asked.
My first priority when we moved in was to increase his caloric intake somehow. I chose breakfast, because he was eating it so late he never got lunch, so if I got breakfast in him early enough, I could start feeding him lunch, too. And I made oatmeal because he grew up with it, so it would be familiar, and it was cheap, so I could make as much as he wanted to eat, it was super easy to make, and it would stay hot if I warmed the bowl. Also, I put it on a tray and brought it upstairs to him. I knew I had to do something so my mom wouldn't be jealous, so I made her coffee, and pre heated the mug, and toasted an English muffin for her. And distracted her with that, while coaxing my dad to get up and start moving.
When I first moved in, I didn't have a clear idea of what to do and how to convince my parents it needed to be done. My priorities were washing out the dirty, overcrowded cabinets and finding out exactly what was in the jam-packed fridges, one in the kitchen and one in the garage. But my mother's priority was to have us all eating dinner together at night without her having to actually plan it, purchase it, prepare it, serve it, or clean it up, LOL.
This is just a bit of a ramble, I'm afraid. I had such clear ideas about what had to be done, and YET!! it took so long to get the simplest routines in place. I did all the right things, but the biggest problem has been not knowing how to work together as a team with my husband, or my mother. I think some trust and respect is essential to achieving anything as a team, and I still am no good at building those relationships. But, is my dad eating more? Yes he is! Does he weigh more? Yes he does! So that part is a success, just the hard boring work of carrying trays up and down, getting dishes and cutlery and pans washed and back on shelves, getting potatoes peeled and boiled and gravy made and meat defrosted in time , and smiling! That part is a success.
Hugs to all, thanks for listening!
Thank you @KaeKae junebug and @tyty333 and all others who paused in their busy days to send kind thoughts my way.
I don't have much to say except thank you for listening and it was so nice to be able to say some things here--no one knows me here and no one knows my parents, so I don't have to smile when, for example, people tell me what a great cook my mother is when she hasn't been for years. I am not close with either of my folks, and I don't know them well, but my dad was wasting away in front of our eyes, and my mom let it happen. He has dementia (unspecified, another thing that drives me nuts is she sees no need to look into his diagnoses, but finds her own absorbing) and whenever we visited, I could see it might take him two or three hours to simply make his own breakfast, just put milk and dry cereal in a bowl and eat it. He had a good appetite, so would eat what we put in front of him, (both my husband and I cook and grill) but it took him soooooo lonnnnnnng to eat 3 or 4 ounces of meat, a cup of mashed p, a half cup of steamed broccoli/similar. He was never a heavy man, but had maintained a weight of 156 pounds for many years, and now he was under 130 pounds. His blood pressure would drop to 59 over I don't remember, which my mom would know because she would take his blood pressure, and then talk about how he fell in her arms and she would have to call 911. I wanted her to talk to a doctor about it, it seemed like dangerously low blood pressure to me, and of course, "follow up on low blood pressure with physician on record" was printed on every page of every set of discharge papers she was handed when leaving the emergency room with him, but she would use smile at me and say he was much improved when I asked.
My first priority when we moved in was to increase his caloric intake somehow. I chose breakfast, because he was eating it so late he never got lunch, so if I got breakfast in him early enough, I could start feeding him lunch, too. And I made oatmeal because he grew up with it, so it would be familiar, and it was cheap, so I could make as much as he wanted to eat, it was super easy to make, and it would stay hot if I warmed the bowl. Also, I put it on a tray and brought it upstairs to him. I knew I had to do something so my mom wouldn't be jealous, so I made her coffee, and pre heated the mug, and toasted an English muffin for her. And distracted her with that, while coaxing my dad to get up and start moving.
When I first moved in, I didn't have a clear idea of what to do and how to convince my parents it needed to be done. My priorities were washing out the dirty, overcrowded cabinets and finding out exactly what was in the jam-packed fridges, one in the kitchen and one in the garage. But my mother's priority was to have us all eating dinner together at night without her having to actually plan it, purchase it, prepare it, serve it, or clean it up, LOL.
This is just a bit of a ramble, I'm afraid. I had such clear ideas about what had to be done, and YET!! it took so long to get the simplest routines in place. I did all the right things, but the biggest problem has been not knowing how to work together as a team with my husband, or my mother. I think some trust and respect is essential to achieving anything as a team, and I still am no good at building those relationships. But, is my dad eating more? Yes he is! Does he weigh more? Yes he does! So that part is a success, just the hard boring work of carrying trays up and down, getting dishes and cutlery and pans washed and back on shelves, getting potatoes peeled and boiled and gravy made and meat defrosted in time , and smiling! That part is a success.
Hugs to all, thanks for listening!
Congratulations Maja, you are doing a great job.
It's not easy, in fact, it's down right hard. When my aunt fell the last time, which finally put her in the nursing home, I realized that while my daughter was in college and on the brink of becoming an independent adult, capable of taking care of herself, my aunt was losing that ability. So, as my brother and I were discovering all the things she hid from us, so that we wouldn't push so hard for assisted living, I could see understand why she kept things to herself. I wish we had known sooner, that her friend, who finally called B(brother) to fill him in had done it sooner. But I think the friend was conflicted about it, too.
Ironically, we are now having her name added to the waiting list for assisted living at her place. The list is long for patients on Medicaid, and the chances of her ever being able to live that way are slim, but it's helping her morale and that's a big deal for us.
Fact is, people choose their vacations more carefully then they do their senior years/life preparations
Cannot agree more.
I've recently seen five people who had to be placed in "panic mode" it's so frustrating. We have several positive examples as well, though, where people planned carefully, accepted help early on and subsequently stayed at home until their last day.
I'm writing letter to my older self to remind me of this!!!
Tyty, I 100% agree that so much should have been done before we had to. She took big advantage of the fact that I was living across the country at the time and my brother, while closer, was not nearby, either. When he and his family saw her, she did a good job of covering up.
She called B again, making crazy claims about how terrible it is at the rehab/nursing home. Yesterday, all she wanted was to get out of the hospital, now she wants out of the NH. I have a feeling that if she were to get to assisted living, that wouldn't be good either. Unfortunately, she can't have what she wants, which is to go back to her apartment in Queens. Even if we still had it, even if she was mentally capable, that apartment was not set up properly for what she needs.
Honestly, and not to get too far into it, there is no way she could navigate the bathroom, let alone use it independently. Her health and physical limitations are so bad, she would fall and die on the floor. She's lucky that didn't happen 3 years ago, when she fell and was seriously injured. A neighbor, who kept tabs on her, knew there was a problem when she didn't answer the door.
Don't be too hard on yourself. Guilt is a big part this scenario--we've all been there! Anyway, there probably wasn't much you could have done before her fall--even if you had advocated assisted living and the like, she would have stayed in her own home. This was our experience.
Hope the dog perked her up!
cheers--Sharon
Tyty, I 100% agree that so much should have been done before we had to. She took big advantage of the fact that I was living across the country at the time and my brother, while closer, was not nearby, either. When he and his family saw her, she did a good job of covering up.
She called B again, making crazy claims about how terrible it is at the rehab/nursing home. Yesterday, all she wanted was to get out of the hospital, now she wants out of the NH. I have a feeling that if she were to get to assisted living, that wouldn't be good either. Unfortunately, she can't have what she wants, which is to go back to her apartment in Queens. Even if we still had it, even if she was mentally capable, that apartment was not set up properly for what she needs.
Honestly, and not to get too far into it, there is no way she could navigate the bathroom, let alone use it independently. Her health and physical limitations are so bad, she would fall and die on the floor. She's lucky that didn't happen 3 years ago, when she fell and was seriously injured. A neighbor, who kept tabs on her, knew there was a problem when she didn't answer the door.
The above was typed up last evening, but apparently , I didn't post it. More of the same happened later in the evening, with my poor SIL having to take the call, because B wasn't home for a bit. Look
s like I'm heading down there in a little while to take my lumps. I'll be taking the toy poodle, who Aunt J loves, so maybe I'll get a few brownie points that way.
I'll shut up now and let others talk for awhile. Hugs to all!
I'll shut up now and let others talk for awhile. Hugs to all!