- Joined
- Jun 8, 2008
- Messages
- 54,801
Girls is it OK if I just share for a moment and read the posts later. I just got off the telemedicine call. The parathyroid expert feels I either have 1. A calcium deficiency which diet isn't helping or 2. Parathryoid disease for which surgery is the only answer.
So she wants me to trial 1200 mg Ca divided throughout the day for a month and retest. She feels my body is struggling to hold onto calcium and I am not absorbing it from diet. So I must supplement. But I have been supplementing half the RDA (600 mg) daily and that didn't budge my PTH. But she feels I need more despite getting Ca from food. If this doesn't work I need surgery to remove my parathyroids. Ugh. So hoping the Ca works.
She said there is 100% something wrong and I cannot let my PTH continue on elevated like it has been for 4 years. It is wreaking damage on my body. @Bayek 's sister died from PTH disease. SO it is a serious matter but all my doctors were just shrugging their shoulders for years not knowing what to do. Ugh. I found this specialist through one of my online medical groups. She cannot take my insurance since she is licensed in Arizona and not NY or NJ unfortunately.
Our morning eye appointments went well enough though both of us have mac drusen which is a precursor to mac degeneration which is in both our immediate families. And in fact when I had genetic testing years ago it said I had a 100% chance of getting mac degeneration. Oh well. But luckily our retinas are both intact and no bleeding or tears. Which Greg had years ago...retinal bleeding so we were overdue for an exam.
OK that's my update. Appreciate being able to share with you. XOXO
So she wants me to trial 1200 mg Ca divided throughout the day for a month and retest. She feels my body is struggling to hold onto calcium and I am not absorbing it from diet. So I must supplement. But I have been supplementing half the RDA (600 mg) daily and that didn't budge my PTH. But she feels I need more despite getting Ca from food. If this doesn't work I need surgery to remove my parathyroids. Ugh. So hoping the Ca works.
She said there is 100% something wrong and I cannot let my PTH continue on elevated like it has been for 4 years. It is wreaking damage on my body. @Bayek 's sister died from PTH disease. SO it is a serious matter but all my doctors were just shrugging their shoulders for years not knowing what to do. Ugh. I found this specialist through one of my online medical groups. She cannot take my insurance since she is licensed in Arizona and not NY or NJ unfortunately.
Our morning eye appointments went well enough though both of us have mac drusen which is a precursor to mac degeneration which is in both our immediate families. And in fact when I had genetic testing years ago it said I had a 100% chance of getting mac degeneration. Oh well. But luckily our retinas are both intact and no bleeding or tears. Which Greg had years ago...retinal bleeding so we were overdue for an exam.
OK that's my update. Appreciate being able to share with you. XOXO