Kaleigh said:What I have is very rare, 15 out of every 100,00 are afflicted. I saw that there is an associtation for this, and tried to register but got a message saying error, due to my server?? I am having Karl help me sort this out.
This is all very new to me, and hard because I have fought the good fight on my neck for years... I have pain 24/7 with my neck. I had to give up Tennis, and that was my love..
Part of my gave up period, when I had to give up tennis..
Then I found PS. Will be 6 years in November... And having been a care taker for my grandparents... Helping them fight the good fight against cancer..
I felt like God would spare me in some way... I am angry dammit.
THanks for letting me vent. The tears are flowing so hard, I am just done.![]()
Anastasia said:soocool - we are neighbors!
Kaleigh said:Asking you gals for some thoughts, prayers, or good vibes. I saw my neurologist today... I was diagnosed with a disorder... I am trying to keep my chin up.. I have a nerve disorder from my herniated disks in my neck, and it's traveling up to my face... Yeah it sucks. I am on new medicine... This is all new to me... I am hoping the nerve calms down, and it will go away...
But am scared stiff.![]()
Kaleigh said:Asking you gals for some thoughts, prayers, or good vibes. I saw my neurologist today... I was diagnosed with a disorder... I am trying to keep my chin up.. I have a nerve disorder from my herniated disks in my neck, and it's traveling up to my face... Yeah it sucks. I am on new medicine... This is all new to me... I am hoping the nerve calms down, and it will go away...
But am scared stiff.![]()
movie zombie said:kaleigh, i know you're in lurking mode but i just wanted to say howdy.
let me know if/when you have an assignment for me.....the offer has no expiration date!
MoZo
[/quote][/quote]movie zombie said:[quote="Kaleigh" BUT with me, I am proactive and hit the ground running. I do have a firm diagnosis..Many thanks,Lisa quote]
this is great!
i await my assignment.....hopefully, karl as a computer whiz has all the e-mails he has sent and will figure out which one is my address!
MoZo
diamondseeker2006 said:Lisa, I am so very sorry to hear this!!! I can imagine how frustrating it is to be unable to access the much needed information on a rare disorder. I will certainly pray for you! {{{hugs}}}
Kaleigh said:diamondseeker2006 said:Lisa, I am so very sorry to hear this!!! I can imagine how frustrating it is to be unable to access the much needed information on a rare disorder. I will certainly pray for you! {{{hugs}}}
Thanks DS. Hate to see you under these circumstances... Have missed you..
Thanks Anastasia...
I will get the info I need, Karl is my advocate for now...![]()
I don't want to take up any more room here....![]()
Back to all you lovely ladies,. sorry for the threadjacks...