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Let''s send our prayers and best wishes to

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Angello is constantly in our thoughts, Nan, you are not alone.
 
Dear Nan,
Prayers and thoughts for you and baby Angello.

God Bless,

Lori and family
 
Poor little guy
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I know this is so tough on all of you. Hang in there. We''re all thinking about you. Give him a hug for us.
 
I am really, really pulling for you Nan and Angello - Lord, whoever and wherever and whatever you are, help them get through this...it''s the LAST FREAKING PART!!!! Thinking about you guys....willing his immune system to kick the crap out of some stupid bacteria and drain that fluid!!!
 
All my positive energy, luck, love, and thoughts are directed at Angelo and Nan! Hang in there, both of you.
 
Nan called on her way home from the hospital. There are some things that need to be done before Monday. She wants to speak to the cardiologist who is away and relay all that is going on to him. I need to call my friend who knows all about the surgery and Angello, He is a doctor at The Children''s Hospital Of Philadelphia where this surgery was pioneered by Dr. Noorwood. And will see what tomorrow brings. I am glad that she is home to get a good nights sleep. More info tomorrow, good night.
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Lisa
 
Good Night Lisa & Thanks again for letting us know how Angello''s doing.

I''m sad to come back and read this too but :< G-d willing he''ll be moving back in a positive, healing direction soon. Nan, he''s(and all of you are) still in my prayers! Hugs, Kayla
 
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Thank you all.
I was able to speak with the surgeon today. He feels that his white blood cell count is not high enough to worry about the infection being behind the chest bone. So they would have to open the incision to drain the fluid and rid the infection.

Angello''s surgeon for the first two procedures once told me that Angello was one of the most complicated cases he had ever worked on.
This new surgeon told me that he had to get through a lot of scar tissue; the most he had ever seen in any patient.

Geez- my boy is just giving them the business. He''s just so complex.
I think all that scar tissue may be to blame for some of these issues.

He''s tolerating his feeds through the tube which is great. He''s getting the fluid out of his body too= also great.
His numbers look good.

We''ll just wait and see.
Meanwhile he just looks so sad.
His brothers and sisters came in to see him today. I hope that helped. He held his sister''s hand for a good while and his big brother Orion (3) gave him lots of kisses.

I think he may have had a little twinkle in his eye when he saw them.

I''m afraid to go to sleep- I''m afraid to get that dreaded phone call during the night.

The prayers and well wishes are so wonderful. It''s such a relief to know everyone is pulling for him.

Thank you so very much.
 
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Please get some rest. You need to take care of yourself too b/c he needs you!!! He is in very good hands by the sounds of it...And you say his numbers look good and the fluid is coming out so that's great! And we are all thinking of him and you and the whole family. He'll be home in no time flat!!!
 
Date: 8/28/2005 1:38:42 AM
Author: sevens one
Meanwhile he just looks so sad.

You are breaking my heart. There is nothing worse than being the mother of a child who trusts you and feels you can make everything OK and whom you feel you are betraying (by your failure to be omnipotnent). One exception might be to be the child who feels betrayed. Children think their parents can control everything. I have had very little experience with this, unlike you, but when my daughter (at age 5) got appendicitis I had a glimpse of it. As she suffered before they finally figured out what it was, asking me to help her, and as she healed after surgery I felt I would come undone. To say this is "stressful" is to say that the Pacific Ocean is moist.

All I can do is to tell you that I have at least a glimpse of the horror you are living, although I do not really know it...and that I deeply care.

Love,
Deb
 
prayers continue.
He is going to be aok.
 
Awww, Nan. I''m so glad that "the big kids" got to see Angello yesterday. I keep thinking of them too. Little Orion is only 3...that is a young age to have his mama gone a lot. I know that your other kids must miss you too! I wish I were there to take out the other kids...I''d love to take them to a park and then McDonald''s, lol. I know that they will be fine but an illness like Angello''s has to take its toll on the whole family. Thank goodnes that you are such a wonderful loving mother...they have that to carry them through the difficult times. And I''m sure the "big kids" are a huge help too.

We are all pulling for you and Angello and the whole family.

Hang in there Sweetie!

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oh Nan. My heart just aches for you all. Please know that my prayers will continue for a quick healing for Angello and wisdom for the doctors in being able to find out what''s going on and solve it quickly. Sending love your way...
 
HI:

Woke up, ran to the computer to see how "our" family is doing....am very glad to hear Angelo can tolerate his feedings as this helps to make him stronger, and hope his breathing is much easier. Nan from where you draw your endless strength I do not know--I am in awe--but like me, I read that your PS family sincererly wish to be here for you to help share your worries and hopefully lighten the load.
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cheers--Sharon
 
I just had a nice talk with my friend Gil who is a doctor at CHOP and knows Dr. Norwood the creator of this surgery. He knows all about Angello and he made me feel much better. I relayed this to Nan just now and she feels soooo much better. Gil did ask some great questions and Nan will find out the answers to them and I will relay them to Gil. I am so thankful he is home today and can help Nan out. He is an amazing doctor and a great friend. I will fill you guys in this afternoon. But I believe that once they drain the lungs and get rid of the infection Angello will definitley be on the road to a speedy recovery.
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Lisa
 
Hoping everything will be okay. Keeping you all in my prayers.
 
I just talked to Nan and things are good. He is still leaking fluid from his chest so they will most likely have to drain that tomorrow. She gave me all the names of the antibiotics and I relayed that information to Gil. Gil says that they are very good antibiotics and that when they drain his lungs that will be a huge help. Angello''s vitals are very good and he doesn''t have a fever. So all in all good news, YAY!!!!
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Lisa
 
Date: 8/28/2005 2:20:53 PM
Author: kaleigh
I just talked to Nan and things are good. He is still leaking fluid from his chest so they will most likely have to drain that tomorrow. She gave me all the names of the antibiotics and I relayed that information to Gil. Gil says that they are very good antibiotics and that when they drain his lungs that will be a huge help. Angello''s vitals are very good and he doesn''t have a fever. So all in all good news, YAY!!!!
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Lisa
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Date: 8/28/2005 2:20:53 PM
Author: kaleigh
I just talked to Nan and things are good. He is still leaking fluid from his chest so they will most likely have to drain that tomorrow. She gave me all the names of the antibiotics and I relayed that information to Gil. Gil says that they are very good antibiotics and that when they drain his lungs that will be a huge help. Angello''s vitals are very good and he doesn''t have a fever. So all in all good news, YAY!!!!

I am very happy to hear the good news. Thank you, Lisa.

Deb
 
Sorry to introduce myself under such circumstances but wanted to let Nan know that even us shy long-time lurkers are pulling for her and Angello. Hang in there!
 
surfrgrl, glad to have you with us!!!!
 
Thank you!
 
angello and his whole family are constantly in my thoughts. i will continue praying for a successful outcome.

welcome surfrgrl
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Nan just called and was going home to enjoy a cook out with her family. Her hubby was grilling sausages stuffed with spinach and cheese, and some salmon, Yummm. So it will be a nice break for her. Angello was looking at a picture of his siblings and there was a glimmer in his eye, YAY.
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Lisa
 
Still sending good thoughts and prayers for Angello, Nan and the whole family. Sounds like things are going in the right direction--just wish it was happening faster and he could finally be at home where he belongs. Nan, my heart breaks for you but you are a strong woman with a tough little boy and your strength is going to help him get through this. Try to rest and stay healthy for your child. We''re all here waiting for more good news.
 
Prayers continue.


Thank you Lord for the progress Angello has made.
I pray that you touch him with your healing hands and see him thru this rough patch and on to a full recovery.
Lord I pray that you bless and comfort his family and keep them all wrapped in your loving arms.
Bring them comfort and peace secure in the knowledge that Angello is in your care and you will keep him safe.
In Jesus name
Amen!
 
Storm, that was a lovely prayer.
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I am glad to hear the good news. I hope Nan enjoys an evening at home with her family. Must be difficult to be torn in so many directions.

Tomorrow is Monday - the hospital will be in full swing again and I''m sure Angelo will be on his way to a complete recovery!
 
Nan, you and that sweet baby continue in my thoughts and prayers!!!
 
A turn for the better...thank God! All the love and stength of family are pulling him through this long and difficult time.
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